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All lobbying clients

RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)

Lobbying client · District of Columbia · filed 2025 to 2026

Advocacy organization focused on issues of importance to the rare disease community

$490,000 Reported spend
14 Filings counted
1 Outside firm hired
13 Bills named

Spend is reported income plus in-house expenses across 14 filings. The LDA keeps a separate client record for every registrant that files for a client, so this page adds up 2 records, one per registrant listed below. Records are combined when the client name matches once case, punctuation and endings such as Inc. or LLC are set aside; for a city, county or port the state has to match as well. These filings have also been reported as EVERYLIFE FOUNDATION FOR RARE DISEASES.

 Who filed for this client 2

Spend per registrant: fees an outside firm reported, or the costs the client reported for lobbying in-house. The rows add up to the total above.

 Bills named in these filings 13
  • H.R. 1509
    Accelerating Kids’ Access to Care Act of 2025
    10 filings
  • S. 752
    Accelerating Kids’ Access to Care Act
    10 filings
  • H.R. 1532
    Scientific EXPERT Act of 2025
    7 filings
  • S. 822
    Scientific EXPERT Act of 2025
    7 filings
  • H.R. 1
    One Big Beautiful Bill Act
    5 filings
  • H.R. 1262
    Mikaela Naylon Give Kids a Chance Act
    5 filings
  • H.R. 4709
    Newborn Screening Saves Lives Reauthorization Act of 2025
    5 filings
  • S. 932
    Give Kids a Chance Act of 2025
    5 filings
  • H.R. 1414
    Cameron’s Law
    2 filings
  • H.R. 5509
    Safe Step Act
    2 filings
  • H.R. 7118
    Genomic Answers for Children’s Health Act of 2026
    2 filings
  • S. 2903
    Safe Step Act
    2 filings
  • H.R. 10359
    Priority for Pediatric Cures Act
    1 filing
 Reported by year 2 years
  • 2026 $270,000 6 filings
  • 2025 $220,000 8 filings
 Issues lobbied 3

The count is how many filings named that issue area. A filing reports one lump figure covering every issue on it, so the money above cannot be split between them.

 Agencies and chambers lobbied 2
  • HOUSE OF REPRESENTATIVES 14
  • SENATE 14
 Recent filings 14 total
Q3 report
FAEGRE DRINKER BIDDLE & REATH LLP
3rd Quarter 2026 (July 1 - Sep 30) · House · Senate · $30,000 income · posted Oct 20, 2026
View → Q3 report
RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
3rd Quarter 2026 (July 1 - Sep 30) · House · Senate · $60,000 expenses · posted Oct 16, 2026
View → Q2 report
FAEGRE DRINKER BIDDLE & REATH LLP
2nd Quarter 2026 (Apr 1 - June 30) · House · Senate · $30,000 income · posted Jul 20, 2026
View → Q2 report
EVERYLIFE FOUNDATION FOR RARE DISEASES
2nd Quarter 2026 (Apr 1 - June 30) · House · Senate · $40,000 expenses · posted Jul 17, 2026
View → Q1 report
EVERYLIFE FOUNDATION FOR RARE DISEASES
1st Quarter 2026 (Jan 1 - Mar 31) · House · Senate · $70,000 expenses · posted Apr 20, 2026
View → Q1 report
FAEGRE DRINKER BIDDLE & REATH LLP
1st Quarter 2026 (Jan 1 - Mar 31) · House · Senate · $40,000 income · posted Apr 17, 2026
View → Q4 report
FAEGRE DRINKER BIDDLE & REATH LLP
4th Quarter 2025 (Oct 1 - Dec 31) · House · Senate · $20,000 income · posted Jan 19, 2026
View → Q4 report
EVERYLIFE FOUNDATION FOR RARE DISEASES
4th Quarter 2025 (Oct 1 - Dec 31) · House · Senate · $20,000 expenses · posted Jan 15, 2026
View → Q3 report
FAEGRE DRINKER BIDDLE & REATH LLP
3rd Quarter 2025 (July 1 - Sep 30) · House · Senate · $10,000 income · posted Oct 17, 2025
View → Q3 report
EVERYLIFE FOUNDATION FOR RARE DISEASES
3rd Quarter 2025 (July 1 - Sep 30) · House · Senate · $60,000 expenses · posted Oct 16, 2025
View → Q2 report
FAEGRE DRINKER BIDDLE & REATH LLP
2nd Quarter 2025 (Apr 1 - June 30) · House · Senate · $20,000 income · posted Jul 17, 2025
View → Q2 report
EVERYLIFE FOUNDATION FOR RARE DISEASES
2nd Quarter 2025 (Apr 1 - June 30) · House · Senate · $40,000 expenses · posted Jul 17, 2025
View → Q1 report
EVERYLIFE FOUNDATION FOR RARE DISEASES
1st Quarter 2025 (Jan 1 - Mar 31) · House · Senate · $30,000 expenses · posted Apr 21, 2025
View → Q1 report
FAEGRE DRINKER BIDDLE & REATH LLP
1st Quarter 2025 (Jan 1 - Mar 31) · House · Senate · $20,000 income · posted Apr 10, 2025
View →

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Filings through , the newest posted date on this record. Source: federal Lobbying Disclosure Act filings, synced daily. Money is self-reported by the filer and often rounded. Lobbying is legal, disclosed activity.

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