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All lobbying filings

FAEGRE DRINKER BIDDLE & REATH LLP

Lobbying for EVERYLIFE FOUNDATION FOR RARE DISEASES · Advocacy organization focused on issues of importance to the rare disease community

 Filing 1st Quarter - Report
1st Quarter (Jan 1 - Mar 31) 2026 · District of Columbia · House · Senate · $40,000.00 income · posted Apr 17, 2026

Official filing document

 Bills named in this filing 2
  • S 752
    Accelerating Kids’ Access to Care Act
  • HR 1509
    Accelerating Kids’ Access to Care Act of 2025
 Lobbying activity 3
Health Issues

Reauthorization of Pediatric Priority Review Voucher and the Consolidated Appropriations Act; Rare Disease Congressional Caucus; concerns regarding FDA review of rare disease therapies; hearing preparations.

Budget/Appropriations

FY 27 rare disease policy and programmatic requests pertaining to rare disease therapy development and research.

Medicare/Medicaid

Accelerating Kids Access to Care Act (S.752/H.R. 1509) and the Consolidated Appropriations Act.

Source: federal Lobbying Disclosure Act filing. Bills are parsed from the activity descriptions.

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