All lobbying filings
FAEGRE DRINKER BIDDLE & REATH LLP
FAEGRE DRINKER BIDDLE & REATH LLP filed a Q1 report for EVERYLIFE FOUNDATION FOR RARE DISEASES on April 17, 2026, reporting $40,000 in lobbying income.
Lobbying for EVERYLIFE FOUNDATION FOR RARE DISEASES · Advocacy organization focused on issues of importance to the rare disease community
Filing · LD-2 quarterly report
Q1 report
Reporting period
1st Quarter 2026
Jan 1 - Mar 31 · Posted Apr 17, 2026
Income
$40,000
What the client paid this registrant for the period.
Client based in
District of Columbia
Lobbyists on this filing
1
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NICHOLAS PETER MANETTOPreviously held: Press Secretary and Legislative Assistant, Rep. Christopher H. Smith (R-NJ)
Government bodies contacted
2
Lobbying activity
3
Reauthorization of Pediatric Priority Review Voucher and the Consolidated Appropriations Act; Rare Disease Congressional Caucus; concerns regarding FDA review of rare disease therapies; hearing preparations.
FY 27 rare disease policy and programmatic requests pertaining to rare disease therapy development and research.
Accelerating Kids Access to Care Act (S.752/H.R. 1509) and the Consolidated Appropriations Act.