RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)

Registrant on federal lobbying filings · filed 2025 to 2026

$0 Income reported

1 Clients represented

7 Filings counted

0 Former members lobbying

Income is the fees this registrant reported being paid to lobby. It also reported $320,000 of in-house lobbying expenses, which is what a registrant files when it lobbies for itself. Everything on this page is grouped by the registrant's LDA id (401106105), not by name. Filings under this id have also been reported as EVERYLIFE FOUNDATION FOR RARE DISEASES.

Clients 1

RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES) $320,000 7 filings

Reported by year 2 years

2026 $170,000 3 filings
2025 $150,000 4 filings

Issues lobbied 1

Health Issues 7

The count is how many filings named that issue area. A filing reports one lump figure covering every issue on it, so the money above cannot be split between them.

Agencies and chambers lobbied 2

HOUSE OF REPRESENTATIVES 7
SENATE 7

Recent filings 7 total

Q3 report

RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)

3rd Quarter 2026 (July 1 - Sep 30) · House · Senate · $60,000 expenses · posted Oct 16, 2026

View → Q2 report

EVERYLIFE FOUNDATION FOR RARE DISEASES

2nd Quarter 2026 (Apr 1 - June 30) · House · Senate · $40,000 expenses · posted Jul 17, 2026

View → Q1 report

EVERYLIFE FOUNDATION FOR RARE DISEASES

1st Quarter 2026 (Jan 1 - Mar 31) · House · Senate · $70,000 expenses · posted Apr 20, 2026

View → Q4 report

EVERYLIFE FOUNDATION FOR RARE DISEASES

4th Quarter 2025 (Oct 1 - Dec 31) · House · Senate · $20,000 expenses · posted Jan 15, 2026

View → Q3 report

EVERYLIFE FOUNDATION FOR RARE DISEASES

3rd Quarter 2025 (July 1 - Sep 30) · House · Senate · $60,000 expenses · posted Oct 16, 2025

View → Q2 report

EVERYLIFE FOUNDATION FOR RARE DISEASES

2nd Quarter 2025 (Apr 1 - June 30) · House · Senate · $40,000 expenses · posted Jul 17, 2025

View → Q1 report

EVERYLIFE FOUNDATION FOR RARE DISEASES

1st Quarter 2025 (Jan 1 - Mar 31) · House · Senate · $30,000 expenses · posted Apr 21, 2025

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Filings through October 16, 2026, the newest posted date on this record. Source: federal Lobbying Disclosure Act filings, synced daily. Money is self-reported by the filer and often rounded. Lobbying is legal, disclosed activity.