All lobbying filings

EVERYLIFE FOUNDATION FOR RARE DISEASES

EVERYLIFE FOUNDATION FOR RARE DISEASES filed a Q1 report for EVERYLIFE FOUNDATION FOR RARE DISEASES on April 20, 2026.

Lobbying for EVERYLIFE FOUNDATION FOR RARE DISEASES

All filings by EVERYLIFE FOUNDATION FOR RARE DISEASES · Everything EVERYLIFE FOUNDATION FOR RARE DISEASES has reported

Filing · LD-2 quarterly report Q1 report

Reporting period

1st Quarter 2026

Jan 1 - Mar 31 · Posted Apr 20, 2026

Expenses

$70,000

What this organization spent lobbying with its own staff. Reported using the LDA's own definitions (method A): the three LDA methods count different costs, so an expenses figure is not comparable across filers that used different ones.

Client based in

District of Columbia

Official filing document

Government bodies contacted 2

The chambers, agencies and offices the filer named. It does not say who inside them was contacted, or when. Each name opens every filing that named the same body.

Lobbying activity 1

Health Issues

S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations

Bills named in this filing 7

S. 822
Scientific EXPERT Act of 2025
H.R. 1532
Scientific EXPERT Act of 2025
S. 932
Give Kids a Chance Act of 2025
H.R. 1262
Mikaela Naylon Give Kids a Chance Act
S. 752
Accelerating Kids’ Access to Care Act
H.R. 1509
Accelerating Kids’ Access to Care Act of 2025
H.R. 4709
Newborn Screening Saves Lives Reauthorization Act of 2025

Source: federal Lobbying Disclosure Act filing, reproduced as filed. Bills are parsed from the activity descriptions.