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All lobbying filings

FAEGRE DRINKER BIDDLE & REATH LLP

Lobbying for EVERYLIFE FOUNDATION FOR RARE DISEASES · Advocacy organization focused on issues of importance to the rare disease community

 Filing 4th Quarter - Report
Reporting period
4th Quarter 2025
Oct 1 - Dec 31 · Posted Jan 19, 2026
Income
$20,000.00
What the client paid this registrant for the period.
Client based in
District of Columbia

Official filing document

 Lobbyists on this filing 1
  • NICHOLAS PETER MANETTO
    Previously held: Press Secretary and Legislative Assistant, Rep. Christopher H. Smith (R-NJ)

A "covered position" is a government job the lobbyist held in the 20 years before registering, which the law requires them to name. See the revolving door for former members of Congress across all filings.

 Government bodies contacted 2
  • HOUSE OF REPRESENTATIVES
  • SENATE

The chambers, agencies and offices the filer named. It does not say who inside them was contacted, or when.

 Bills named in this filing 3
  • HR 1
    An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
  • HR 1509
    Accelerating Kids’ Access to Care Act of 2025
  • S 752
    Accelerating Kids’ Access to Care Act
 Lobbying activity 3
Health Issues

Implementation of FDA Rare Disease Innovation Hub; reauthorization of Pediatric Priority Review Voucher; reauthorization of Newborn Screening Saves Lives Act; Activities related to PDUFA VIII; Concerns about FDA Complete Response Letters and other issues related to rare disease therapies; Activities of Congressional Rare Disease Caucus.

Budget/Appropriations

FY 26 appropriations programmatic and report provisions pertaining to rare disease policy priorities; H.R. 1, budget reconciliation/One Big, Beautiful Bill Act.

Medicare/Medicaid

Accelerating Kids Access to Care Act (H.R. 1509/S. 752) and related out-of-state Medicaid issues; Medicaid funding and budget reconciliation; H.R. 1, budget reconciliation/One Big, Beautiful Bill Act.

Source: federal Lobbying Disclosure Act filing, reproduced as filed. Bills are parsed from the activity descriptions.

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