Faegre Drinker Biddle & Reath LLP
Faegre Drinker Biddle & Reath LLP filed a Q4 report for Everylife Foundation for Rare Diseases on January 19, 2026, reporting $20,000 in lobbying income.
Lobbying for Everylife Foundation for Rare Diseases · Advocacy organization focused on issues of importance to the rare disease community
-
NICHOLAS PETER MANETTOPreviously held: Press Secretary and Legislative Assistant, Rep. Christopher H. Smith (R-NJ)
Implementation of FDA Rare Disease Innovation Hub; reauthorization of Pediatric Priority Review Voucher; reauthorization of Newborn Screening Saves Lives Act; Activities related to PDUFA VIII; Concerns about FDA Complete Response Letters and other issues related to rare disease therapies; Activities of Congressional Rare Disease Caucus.
FY 26 appropriations programmatic and report provisions pertaining to rare disease policy priorities; H.R. 1, budget reconciliation/One Big, Beautiful Bill Act.
Accelerating Kids Access to Care Act (H.R. 1509/S. 752) and related out-of-state Medicaid issues; Medicaid funding and budget reconciliation; H.R. 1, budget reconciliation/One Big, Beautiful Bill Act.