All lobbying filings
FAEGRE DRINKER BIDDLE & REATH LLP
Lobbying for EVERYLIFE FOUNDATION FOR RARE DISEASES · Advocacy organization focused on issues of importance to the rare disease community
Filing
2nd Quarter - Report
Reporting period
2nd Quarter 2026
Apr 1 - June 30 · Posted Jul 20, 2026
Income
$30,000.00
What the client paid this registrant for the period.
Client based in
District of Columbia
Lobbyists on this filing
1
-
NICHOLAS PETER MANETTOPreviously held: Press Secretary and Legislative Assistant, Rep. Christopher H. Smith (R-NJ)
Government bodies contacted
2
Lobbying activity
2
FY 27 rare disease policy and programmatic requests pertaining to rare disease therapy development and research.
Policies pertaining to rare disease therapy development; upcoming FDA Prescription Drug User Fee Act (PDUFA) reauthorization.