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FAEGRE DRINKER BIDDLE & REATH LLP

FAEGRE DRINKER BIDDLE & REATH LLP filed a Q1 report for EVERYLIFE FOUNDATION FOR RARE DISEASES on April 10, 2025, reporting $20,000 in lobbying income.

Lobbying for EVERYLIFE FOUNDATION FOR RARE DISEASES · Advocacy organization focused on issues of importance to the rare disease community

All filings by FAEGRE DRINKER BIDDLE & REATH LLP · Everything EVERYLIFE FOUNDATION FOR RARE DISEASES has reported

 Filing · LD-2 quarterly report Q1 report
Reporting period
1st Quarter 2025
Jan 1 - Mar 31 · Posted Apr 10, 2025
Income
$20,000
What the client paid this registrant for the period.
Client based in
District of Columbia

Official filing document

 Lobbyists on this filing 1
  • NICHOLAS PETER MANETTO
    Previously held: Press Secretary and Legislative Assistant, Rep. Christopher H. Smith (R-NJ)

A "covered position" is a government job the lobbyist held in the 20 years before registering, which the law requires them to name. See the revolving door for former members of Congress across all filings.

 Government bodies contacted 2

The chambers, agencies and offices the filer named. It does not say who inside them was contacted, or when. Each name opens every filing that named the same body.

 Lobbying activity 3

2025 end-of-year healthcare package including reauthorization of the Pediatric Priority Review Voucher; legislation pertaining to FDA approval pathways; Implementation of FDA Rare Disease Innovation Hub.

FY 26 appropriations programmatic and report provisions pertaining to rare disease policy priorities.

Accelerating Kids Access to Care Act (H.R. 1509/S. 752) and related out-of-state Medicaid issues; Medicaid funding and budget reconciliation.

 Bills named in this filing 2
  • H.R. 1509
    Accelerating Kids’ Access to Care Act of 2025
  • S. 752
    Accelerating Kids’ Access to Care Act

Source: federal Lobbying Disclosure Act filing, reproduced as filed. Bills are parsed from the activity descriptions.

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