All lobbying filings
FAEGRE DRINKER BIDDLE & REATH LLP
FAEGRE DRINKER BIDDLE & REATH LLP filed a Q1 report for EVERYLIFE FOUNDATION FOR RARE DISEASES on April 10, 2025, reporting $20,000 in lobbying income.
Lobbying for EVERYLIFE FOUNDATION FOR RARE DISEASES · Advocacy organization focused on issues of importance to the rare disease community
Filing · LD-2 quarterly report
Q1 report
Reporting period
1st Quarter 2025
Jan 1 - Mar 31 · Posted Apr 10, 2025
Income
$20,000
What the client paid this registrant for the period.
Client based in
District of Columbia
Lobbyists on this filing
1
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NICHOLAS PETER MANETTOPreviously held: Press Secretary and Legislative Assistant, Rep. Christopher H. Smith (R-NJ)
Government bodies contacted
2
Lobbying activity
3
2025 end-of-year healthcare package including reauthorization of the Pediatric Priority Review Voucher; legislation pertaining to FDA approval pathways; Implementation of FDA Rare Disease Innovation Hub.
FY 26 appropriations programmatic and report provisions pertaining to rare disease policy priorities.
Accelerating Kids Access to Care Act (H.R. 1509/S. 752) and related out-of-state Medicaid issues; Medicaid funding and budget reconciliation.