All lobbying filings
FAEGRE DRINKER BIDDLE & REATH LLP
Lobbying for EVERYLIFE FOUNDATION FOR RARE DISEASES · Advocacy organization focused on issues of importance to the rare disease community
Filing
1st Quarter - Report
Lobbying activity
3
2025 end-of-year healthcare package including reauthorization of the Pediatric Priority Review Voucher; legislation pertaining to FDA approval pathways; Implementation of FDA Rare Disease Innovation Hub.
FY 26 appropriations programmatic and report provisions pertaining to rare disease policy priorities.
Accelerating Kids Access to Care Act (H.R. 1509/S. 752) and related out-of-state Medicaid issues; Medicaid funding and budget reconciliation.