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FAEGRE DRINKER BIDDLE & REATH LLP

FAEGRE DRINKER BIDDLE & REATH LLP filed a Q2 report for EVERYLIFE FOUNDATION FOR RARE DISEASES on July 17, 2025, reporting $20,000 in lobbying income.

Lobbying for EVERYLIFE FOUNDATION FOR RARE DISEASES · Advocacy organization focused on issues of importance to the rare disease community

All filings by FAEGRE DRINKER BIDDLE & REATH LLP · Everything EVERYLIFE FOUNDATION FOR RARE DISEASES has reported

 Filing · LD-2 quarterly report Q2 report
Reporting period
2nd Quarter 2025
Apr 1 - June 30 · Posted Jul 17, 2025
Income
$20,000
What the client paid this registrant for the period.
Client based in
District of Columbia

Official filing document

 Lobbyists on this filing 1
  • NICHOLAS PETER MANETTO
    Previously held: Press Secretary and Legislative Assistant, Rep. Christopher H. Smith (R-NJ)

A "covered position" is a government job the lobbyist held in the 20 years before registering, which the law requires them to name. See the revolving door for former members of Congress across all filings.

 Government bodies contacted 2

The chambers, agencies and offices the filer named. It does not say who inside them was contacted, or when. Each name opens every filing that named the same body.

 Lobbying activity 3
Health Issues

Implementation of FDA Rare Disease Innovation Hub; reauthorization of Pediatric Priority Review Voucher; reauthorization of Newborn Screening Saves Lives Act.

Budget/Appropriations

FY 26 appropriations programmatic and report provisions pertaining to rare disease policy priorities; H.R. 1, budget reconciliation/One Big, Beautiful Bill Act.

Medicare/Medicaid

Accelerating Kids Access to Care Act (H.R. 1509/S. 752) and related out-of-state Medicaid issues; Medicaid funding and budget reconciliation; H.R. 1, budget reconciliation/One Big, Beautiful Bill Act.

 Bills named in this filing 3
  • H.R. 1
    One Big Beautiful Bill Act
  • H.R. 1509
    Accelerating Kids’ Access to Care Act of 2025
  • S. 752
    Accelerating Kids’ Access to Care Act

Source: federal Lobbying Disclosure Act filing, reproduced as filed. Bills are parsed from the activity descriptions.

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