All lobbying filings
Everylife Foundation for Rare Diseases
Everylife Foundation for Rare Diseases filed a Q2 report for Everylife Foundation for Rare Diseases on July 17, 2026.
Lobbying for Everylife Foundation for Rare Diseases
Filing · LD-2 quarterly report
Q2 report
Reporting period
2nd Quarter 2026
Apr 1 - June 30 · Posted Jul 17, 2026
Expenses
$40,000
What this organization spent lobbying with its own staff.
Reported using the LDA's own definitions (method A): the three
LDA methods count different costs, so an expenses figure is
not comparable across filers that used different ones.
Client based in
District of Columbia
Government bodies contacted
2
Lobbying activity
1
S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations; FDA user fee reauthorization; H.R. 7118 - Genomic Answers for Children's Health Act; H.R. 5509, S. 2903 - Safe Step Act; H.R. 1414 - Cameron's Law