NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)

Lobbying client · District of Columbia · filed 2025 to 2026

$330,000 Reported spend

6 Filings counted

1 Firms hired

4 Bills named

Spend is reported income plus in-house expenses across 6 filings. 1 further filing on this record was restated by a later amendment and is left out of every total here. Everything on this page is grouped by the client's LDA id (134504), not by name.

Firms hired 1

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD) $330,000 6 filings

Bills named in these filings 4

HR 1414
Cameron’s Law

2 filings
HR 7383
RARE Act

1 filing
S 1214
RARE Act

1 filing
S 705
Innovation in Pediatric Drugs Act of 2025

1 filing

Reported by year 2 years

2026 $130,000 2 filings
2025 $200,000 4 filings

Issues lobbied 4

The count is how many filings named that issue area. A filing reports one lump figure covering every issue on it, so the money above cannot be split between them.

Agencies and chambers lobbied 5

HOUSE OF REPRESENTATIVES 6
SENATE 6
Centers For Medicare and Medicaid Services (CMS) 5
Health & Human Services, Dept of (HHS) 3
Food & Drug Administration (FDA) 1

Recent filings 7 total

Q2

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)

2nd Quarter (Apr 1 - June 30) 2026 · House · Senate · $50,000 expenses · posted Jul 20, 2026

View → Q1

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)

1st Quarter (Jan 1 - Mar 31) 2026 · House · Senate · $80,000 expenses · posted Apr 15, 2026

View → Q4

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)

4th Quarter (Oct 1 - Dec 31) 2025 · House · Senate · $30,000 expenses · posted Jan 20, 2026

View → Q3

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)

3rd Quarter (July 1 - Sep 30) 2025 · House · Senate · $60,000 expenses · posted Oct 20, 2025

View → 2A

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)

2nd Quarter (Apr 1 - June 30) 2025 · House · Senate · $60,000 expenses · posted Jul 23, 2025

View → Q2

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD) Amended

2nd Quarter (Apr 1 - June 30) 2025 · House · Senate · $50,000 expenses · posted Jul 21, 2025

View → Q1

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)

1st Quarter (Jan 1 - Mar 31) 2025 · House · Senate · $50,000 expenses · posted Apr 16, 2025

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Source: federal Lobbying Disclosure Act filings, synced daily. Money is self-reported by the filer and often rounded. Lobbying is legal, disclosed activity.