All lobbying filings

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)

Lobbying for NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)

Filing 2nd Quarter - Report

2nd Quarter (Apr 1 - June 30) 2026 · District of Columbia · House · Senate · $50,000.00 expenses · posted Jul 20, 2026

Official filing document

Lobbying activity 4

Budget/Appropriations

Appropriations impacting patients with rare diseases. National Institutes of Health (NIH) NCATS Appropriations.

Health Issues

Rare Disease Initiatives. Newborn Screening. Genetic Testing Access. Medical Nutrition Equity Act. Medical Foods and Formulas Act. Orphan Drug Act.

Medicare/Medicaid

Medicare / Medicaid issues impacting patients with rare diseases.

Pharmacy

Pharmaceutical issues impacting patients with rare diseases. Orphan Drug Act. Prescription Drug User Fee Act (PDUFA) Reauthorization. User Fee Agreements.

Source: federal Lobbying Disclosure Act filing. Bills are parsed from the activity descriptions.