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All lobbying filings

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)

Lobbying for NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)

 Filing 3rd Quarter - Report
3rd Quarter (July 1 - Sep 30) 2025 · District of Columbia · House · Senate · $60,000.00 expenses · posted Oct 20, 2025

Official filing document

 Lobbying activity 4
Health Issues

Rare Disease Initiatives. Priority Review Voucher Reauthorization. Newborn Screening.

Medicare/Medicaid

Medicare / Medicaid issues impacting patients with rare diseases.

Pharmacy

Pharmaceutical issues impacting patients with rare diseases. Prescription Drug User Fee Act (PDUFA) Reauthorization. PRV Reauthorization. Promising Pathways Act 2.0. Public Law 119-21: One Big Beautiful Bill Act.

Budget/Appropriations

Appropriations impacting patients with rare diseases. National Institutes of Health (NIH) NCATS Appropriations. FDA Appropriations.

Source: federal Lobbying Disclosure Act filing. Bills are parsed from the activity descriptions.

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