NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)

Lobbying for NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)

Filing 1st Quarter - Report

1st Quarter (Jan 1 - Mar 31) 2026 · District of Columbia · House · Senate · $80,000.00 expenses · posted Apr 15, 2026

Lobbying activity 3

Health Issues

Rare Disease Initiatives. Priority Review Voucher Reauthorization. Affordable Care Act (ACA) Issues and Enhancements. Telehealth.

Medicare/Medicaid

Medicare / Medicaid issues impacting patients with rare diseases. Inflation Reduction Act Implementation.

Pharmacy

Pharmaceutical issues impacting patients with rare diseases. PRV Reauthorization. Inflation Reduction Act Implementation.

Source: federal Lobbying Disclosure Act filing. Bills are parsed from the activity descriptions.