All lobbying filings

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)

Lobbying for NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)

Filing 2nd Quarter - Amendment

2nd Quarter (Apr 1 - June 30) 2025 · District of Columbia · House · Senate · $60,000.00 expenses · posted Jul 23, 2025

Official filing document

Bills named in this filing 1

HR 1414
Cameron’s Law

Lobbying activity 4

Health Issues

Rare Disease Initiatives. Affordable Care Act (ACA) Issues and Enhancements. Priority Review Voucher Reauthorization. Newborn Screening.

Medicare/Medicaid

Medicare / Medicaid issues impacting patients with rare diseases. Inflation Reduction Act Implementation.

Pharmacy

Pharmaceutical issues impacting patients with rare diseases. Orphan Drug Act. Prescription Drug User Fee Act (PDUFA) Reauthorization. RARE Act. Inflation Reduction Act Implementation. PRV Reauthorization. H.R.1414: Camerons Law. Promising Pathways Act 2.0.

Budget/Appropriations

Appropriations impacting patients with rare diseases. National Institutes of Health (NIH) NCATS Appropriations. Advanced Research Projects Agency - Health (ARPA-H) Appropriations. NIH / FDA Appropriations. HHS RIFs.

Source: federal Lobbying Disclosure Act filing. Bills are parsed from the activity descriptions.