All lobbying filings

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)

Lobbying for NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)

Filing 4th Quarter - Report

4th Quarter (Oct 1 - Dec 31) 2025 · District of Columbia · House · Senate · $30,000.00 expenses · posted Jan 20, 2026

Official filing document

Bills named in this filing 2

HR 7383
Feed Our Veterans Act
S 1214
Heating and Cooling Relief Act

Lobbying activity 3

Health Issues

Rare Disease Initiatives. Priority Review Voucher Reauthorization. Newborn Screening. Genetic Testing Access. Affordable Care Act (ACA) Issues and Enhancements. Telehealth.

Medicare/Medicaid

Medicare / Medicaid issues impacting patients with rare diseases. Inflation Reduction Act Implementation.

Pharmacy

Pharmaceutical issues impacting patients with rare diseases. PRV Reauthorization. H.R.7383/S.1214: RARE Act. Inflation Reduction Act Implementation.

Source: federal Lobbying Disclosure Act filing. Bills are parsed from the activity descriptions.