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All lobbying filings

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)

Lobbying for NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)

 Filing 4th Quarter - Report
Reporting period
4th Quarter 2025
Oct 1 - Dec 31 · Posted Jan 20, 2026
Expenses
$30,000.00
What this organization spent lobbying with its own staff. Reported using B: the three LDA methods count different costs, so an expenses figure is not comparable across filers that used different ones.
Client based in
District of Columbia

Official filing document

 Government bodies contacted 3
  • Centers For Medicare and Medicaid Services (CMS)
  • HOUSE OF REPRESENTATIVES
  • SENATE

The chambers, agencies and offices the filer named. It does not say who inside them was contacted, or when.

 Bills named in this filing 2
 Lobbying activity 3
Health Issues

Rare Disease Initiatives. Priority Review Voucher Reauthorization. Newborn Screening. Genetic Testing Access. Affordable Care Act (ACA) Issues and Enhancements. Telehealth.

Medicare/Medicaid

Medicare / Medicaid issues impacting patients with rare diseases. Inflation Reduction Act Implementation.

Pharmacy

Pharmaceutical issues impacting patients with rare diseases. PRV Reauthorization. H.R.7383/S.1214: RARE Act. Inflation Reduction Act Implementation.

Source: federal Lobbying Disclosure Act filing, reproduced as filed. Bills are parsed from the activity descriptions.

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