All lobbying filings

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)

Lobbying for NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)

Filing 1st Quarter - Report

1st Quarter (Jan 1 - Mar 31) 2025 · District of Columbia · House · Senate · $50,000.00 expenses · posted Apr 16, 2025

Official filing document

Bills named in this filing 2

S 705
Innovation in Pediatric Drugs Act of 2025
HR 1414
Cameron’s Law

Lobbying activity 4

Health Issues

Rare Disease Initiatives. Affordable Care Act (ACA) Issues and Enhancements. Telehealth. Priority Review Voucher Reauthorization. Accelerated Approval. Newborn Screening.

Medicare/Medicaid

Medicare / Medicaid issues impacting patients with rare diseases. Inflation Reduction Act Implementation.

Pharmacy

Pharmaceutical issues impacting patients with rare diseases. Orphan Drug Act. Prescription Drug User Fee Act (PDUFA) Reauthorization. User Fee Agreements. RARE Act. Inflation Reduction Act Implementation. PRV Reauthorization. Accelerated Approval. S.705: Innovation in Pediatric Drugs Act of 2025. H.R.1414: Camerons Law. Promising Pathways Act 2.0.

Budget/Appropriations

Appropriations impacting patients with rare diseases. National Institutes of Health (NIH) NCATS Appropriations.

Source: federal Lobbying Disclosure Act filing. Bills are parsed from the activity descriptions.