EVERYLIFE FOUNDATION FOR RARE DISEASES

Lobbying client · District of Columbia · filed 2025 to 2026

$260,000 Reported spend

6 Filings counted

1 Firms hired

12 Bills named

Spend is reported income plus in-house expenses across 6 filings. Everything on this page is grouped by the client's LDA id (210900), not by name.

Firms hired 1

EVERYLIFE FOUNDATION FOR RARE DISEASES $260,000 6 filings

Bills named in these filings 12

HR 1532
Scientific EXPERT Act of 2025

6 filings
S 822
Scientific EXPERT Act of 2025

6 filings
HR 1262
Mikaela Naylon Give Kids a Chance Act

5 filings
HR 1509
Accelerating Kids’ Access to Care Act of 2025

5 filings
S 752
Accelerating Kids’ Access to Care Act

5 filings
S 932
Give Kids a Chance Act of 2025

5 filings
HR 4709
Newborn Screening Saves Lives Reauthorization Act of 2025

4 filings
HR 1
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.

2 filings
HR 1414
Cameron’s Law

1 filing
HR 5509
Safe Step Act

1 filing
HR 7118
Genomic Answers for Children’s Health Act of 2026

1 filing
S 2903
Safe Step Act

1 filing

Reported by year 2 years

2026 $110,000 2 filings
2025 $150,000 4 filings

Issues lobbied 1

Health Issues 6

The count is how many filings named that issue area. A filing reports one lump figure covering every issue on it, so the money above cannot be split between them.

Agencies and chambers lobbied 2

HOUSE OF REPRESENTATIVES 6
SENATE 6

Recent filings 6 total

Q2

EVERYLIFE FOUNDATION FOR RARE DISEASES

2nd Quarter (Apr 1 - June 30) 2026 · House · Senate · $40,000 expenses · posted Jul 17, 2026

View → Q1

EVERYLIFE FOUNDATION FOR RARE DISEASES

1st Quarter (Jan 1 - Mar 31) 2026 · House · Senate · $70,000 expenses · posted Apr 20, 2026

View → Q4

EVERYLIFE FOUNDATION FOR RARE DISEASES

4th Quarter (Oct 1 - Dec 31) 2025 · House · Senate · $20,000 expenses · posted Jan 15, 2026

View → Q3

EVERYLIFE FOUNDATION FOR RARE DISEASES

3rd Quarter (July 1 - Sep 30) 2025 · House · Senate · $60,000 expenses · posted Oct 16, 2025

View → Q2

EVERYLIFE FOUNDATION FOR RARE DISEASES

2nd Quarter (Apr 1 - June 30) 2025 · House · Senate · $40,000 expenses · posted Jul 17, 2025

View → Q1

EVERYLIFE FOUNDATION FOR RARE DISEASES

1st Quarter (Jan 1 - Mar 31) 2025 · House · Senate · $30,000 expenses · posted Apr 21, 2025

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Source: federal Lobbying Disclosure Act filings, synced daily. Money is self-reported by the filer and often rounded. Lobbying is legal, disclosed activity.