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All lobbying clients

ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION

Lobbying client · Pennsylvania · filed 2025 to 2026

patient advocacy organization

$651,738 Reported spend
15 Filings counted
1 Outside firm hired
11 Bills named

Spend is reported income plus in-house expenses across 15 filings. 1 further filing for this client was restated by a later amendment and is left out of every total here. The LDA keeps a separate client record for every registrant that files for a client, so this page adds up 2 records, one per registrant listed below. Records are combined when the client name matches once case, punctuation and endings such as Inc. or LLC are set aside; for a city, county or port the state has to match as well.

 Who filed for this client 2

Spend per registrant: fees an outside firm reported, or the costs the client reported for lobbying in-house. The rows add up to the total above.

 Bills named in these filings 11
  • H.R. 2036
    Credit for Caring Act of 2025
    5 filings
  • S. 925
    Credit for Caring Act of 2025
    4 filings
  • H.R. 5304
    Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026
    2 filings
  • H.R. 8792
    Multigenerational Caregiving Data Act
    2 filings
  • S. 2587
    Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026
    2 filings
  • S. 4513
    Multigenerational Caregiving Data Act
    2 filings
  • H.R. 1968
    Full-Year Continuing Appropriations and Extensions Act, 2025
    1 filing
  • H.R. 6766
    Essential Caregivers Act of 2025
    1 filing
  • H.R. 9260
    Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2027
    1 filing
  • H.R. 9641
    Essential Caregivers Act of 2026
    1 filing
  • S. 3492
    Essential Caregivers Act of 2025
    1 filing
 Reported by year 2 years
  • 2026 $285,903 6 filings
  • 2025 $365,835 9 filings
 Issues lobbied 5

The count is how many filings named that issue area. A filing reports one lump figure covering every issue on it, so the money above cannot be split between them.

 Agencies and chambers lobbied 7
  • HOUSE OF REPRESENTATIVES 14
  • SENATE 14
  • Food & Drug Administration (FDA) 2
  • Centers For Medicare and Medicaid Services (CMS) 1
  • Executive Office of the President (EOP) 1
  • Natl Institutes of Health (NIH) 1
  • Office of Management & Budget (OMB) 1
 Recent filings 16 total
Q3 report
ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION
3rd Quarter 2026 (July 1 - Sep 30) · House · Senate · $46,949 expenses · posted Oct 19, 2026
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Q3 report
IPOLICY SOLUTIONS
3rd Quarter 2026 (July 1 - Sep 30) · House · Senate · $45,000 income · posted Oct 15, 2026
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Q2 report
IPOLICY SOLUTIONS
2nd Quarter 2026 (Apr 1 - June 30) · House · Senate · $45,000 income · posted Jul 16, 2026
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Q2 report
ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION
2nd Quarter 2026 (Apr 1 - June 30) · House · Senate · $55,375 expenses · posted Jul 8, 2026
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Q1 report
ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION
1st Quarter 2026 (Jan 1 - Mar 31) · House · Senate · $48,579 expenses · posted Apr 17, 2026
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Q1 report
IPOLICY SOLUTIONS
1st Quarter 2026 (Jan 1 - Mar 31) · House · Senate · $45,000 income · posted Apr 13, 2026
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Q4 report
ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION
4th Quarter 2025 (Oct 1 - Dec 31) · House · Senate · $45,801 expenses · posted Jan 20, 2026
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Q4 report
IPOLICY SOLUTIONS
4th Quarter 2025 (Oct 1 - Dec 31) · House · Senate · $45,000 income · posted Jan 16, 2026
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Q3 report
ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION
3rd Quarter 2025 (July 1 - Sep 30) · House · Senate · $45,534 expenses · posted Oct 17, 2025
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Q3 report
IPOLICY SOLUTIONS
3rd Quarter 2025 (July 1 - Sep 30) · House · Senate · $45,000 income · posted Oct 15, 2025
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Q2 report
ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION
2nd Quarter 2025 (Apr 1 - June 30) · House · Senate · $49,500 expenses · posted Jul 21, 2025
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Q2 report
IPOLICY SOLUTIONS
2nd Quarter 2025 (Apr 1 - June 30) · House · Senate · $45,000 income · posted Jul 16, 2025
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Q1 amendment
ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION
1st Quarter 2025 (Jan 1 - Mar 31) · House · Senate · $45,000 expenses · posted May 29, 2025
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Q1 report
ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION Amended
1st Quarter 2025 (Jan 1 - Mar 31) · House · Senate · posted Apr 21, 2025
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Q1 report
IPOLICY SOLUTIONS
1st Quarter 2025 (Jan 1 - Mar 31) · House · Senate · $45,000 income · posted Apr 11, 2025
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Registration
IPOLICY SOLUTIONS
1st Quarter 2025 (Jan 1 - Mar 31) · posted Jan 24, 2025
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Filings through , the newest posted date on this record. Source: federal Lobbying Disclosure Act filings, synced daily. Money is self-reported by the filer and often rounded. Lobbying is legal, disclosed activity.

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