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IPOLICY SOLUTIONS

Lobbying for ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION · Patient advocacy organization

 Filing · LD-2 quarterly report Q2 report
Reporting period
2nd Quarter 2026
Apr 1 - June 30 · Posted Jul 16, 2026
Income
$45,000
What the client paid this registrant for the period.
Client based in
Pennsylvania

Official filing document

 Lobbyists on this filing 1
  • JENNIFER RACHEL LEIB
    Previously held: Fellow, Senate Committee on Health, Education, Labor and Pensions

A "covered position" is a government job the lobbyist held in the 20 years before registering, which the law requires them to name. See the revolving door for former members of Congress across all filings.

 Government bodies contacted 4

The chambers, agencies and offices the filer named. It does not say who inside them was contacted, or when. Each name opens every filing that named the same body.

 Lobbying activity 3
Budget/Appropriations

H.R.9260: Labor, Health and Human Services, Education, and Related Agencies FY 2027 No bill number, Senate: Defense FY 2027

Health Issues

HR 8792/S.4513: Multigenerational Caregivers Data Act HR 6766/S3492: Essential Caregivers Act HR 2036/S 925 Credit for Caring Act Docket No. FDA-2026-P-3666-0001: Requests that the FDA codify, regularize, and transparently administer a principle the Agency already recognizes in practice: that the adequacy of an investigation in rare diseases cannot be determined by default assumptions alone. It does not ask FDA to invent a new principle or apply distinct evidentiary thresholds or concessions to rare disease research programs. Drug Repurposing for Unmet Medical Needs; Request for Information (FDA-2026-N-4492) Impacts of Patient-Focused Drug Development Meetings; Establishment of a Public Docket; Request for Information and Comment (FDA-2026-N-3947)

Medical/Disease Research/Clinical Labs

HR 2036 HEALTHY BRAINS Act NOT-OD-26-047: Inviting Comments and Suggestions on a Framework for the NIH-Wide Strategic Plan for Fiscal Years 2027-2031

 Bills named in this filing 5
  • H.R. 9260
    Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2027
  • H.R. 8792
    Multigenerational Caregiving Data Act
  • S. 4513
    Multigenerational Caregiving Data Act
  • H.R. 6766
    Essential Caregivers Act of 2025
  • H.R. 2036
    Credit for Caring Act of 2025

Source: federal Lobbying Disclosure Act filing, reproduced as filed. Bills are parsed from the activity descriptions.

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