THE MICHAEL J. FOX FOUNDATION FOR PARKINSON'S RESEARCH
Lobbying for THE MICHAEL J. FOX FOUNDATION FOR PARKINSON'S RESEARCH
Funding for implementation of Dr. Emmanuel Bilirakis and Honorable Jennifer Wexton National Plan to End Parkinsons Act (Public Law No: 118-66). S.2587/H.R.5304 - Funding for discretionary, non-defense priorities including overall investment in the National Institute of Health, ARPA-H, and Centers for Disease Control and Prevention within the FY 2026 Labor, Health and Human Services, Education, and Related Agencies Appropriation bills. Funding for the National Neurological Conditions Surveillance System under the Centers for Disease Control and Prevention within the FY 2026 Labor, Health and Human Services, Education, and Related Agencies Appropriation bills. S.2572/H.R.4016 - Funding for the Parkinson's Research Program (PRP) under the Department of Defense's Congressionally Directed Medical Research Programs (CDMRP) within the FY 2026 Defense Appropriation bills. H.R.3944 - Funding for the Parkinsons Disease Research, Education and Clinical Centers under the Department of Veterans Affairs within the FY 2026 Military Construction, Veterans Affairs and Related Agencies Appropriation bills.
Increasing the affordability and accessibility of treatments for Parkinsons disease. S.2903/H.R.5509 - Safe Step Act (to be reintroduced) - Requires group health plans to provide an exception process for any medication step therapy protocol to ensure that individuals living with Parkinson's disease can access treatments safely and efficiently.
General Parkinson's disease Information, including information on symptoms, health coverage, health costs, social determinants of health, data collection, research, environmental risks, and health access for underserved communities Implementation of the Dr. Emmanuel Bilirakis and Honorable Jennifer Wexton National Plan to End Parkinsons Act (Public Law No: 118-66) - requires the U.S. Department of Health and Human services to produce an integrated national plan to prevent, diagnose, treat, and cure Parkinsons, ameliorate symptoms, and slow or stop progression. This plan will encompass Parkinsons disease and all other neurodegenerative Parkinsonisms, such as multiple system atrophy, corticobasal degeneration, progressive supranuclear palsy, and Parkinsons-related dementia. The Harmonizing Environmental Analyses and Launching Therapeutic Hubs to Yield Bolstered Research And Innovation in Neurological Science (HEALTHY BRAINS) Act (to be reintroduced): creates a Centers of Excellence grant program within the National Institutes of Health to conduct and support of research, training, and health information dissemination with respect to environmental risk factors of neurodegenerative diseases, including Parkinsons disease. Prioritizing neurodegenerative disease research within the National Institutes of Health
Lobbying to increase the affordability and accessibility of treatments for Parkinsons disease. S.1227/H.R.2491- Alleviating Barriers for Caregivers (ABC) Act: requires the Centers for Medicare & Medicaid Services (CMS) and Social Security to simplify processes and communications for family caregivers to assist individuals in accessing and utilizing benefits.
General Education on Parkinson's Risk Factors: Focused on raising awareness about triggers and risks of Parkinson's disease, including exposure to TCE, paraquat, air pollution, and other environmental chemicals. Banning environmental risk factors of Parkinsons disease, including paraquat.
General education on the importance of the Department of Defense and Department of Veterans Affairs medical research and care programs for military service personnel and Veterans living with Parkinson's disease. Boxing Therapy for Parkinsons Access Act: (to be reintroduced) - Requires the Department of Veterans Affairs (VA) to furnish boxing-based exercise classes to veterans who (1) are enrolled in the VA health care system, (2) have been diagnosed with Parkinson's disease (or a similar movement disorder), and (3) elect to participate in such classes to treat the disease or disorder.
Lobbying to ban the use of or reduce exposures to environmental health threats linked to Parkinsons disease, including Trichloroethylene (TCE) and paraquat, in the United States. S.J.Res.19/H.J.Res.27/ H.J.Res.34 - A joint resolution providing for congressional disapproval under chapter 8 of title 5, United States Code, of the rule submitted by the Environmental Protection Agency relating to """Trichloroethylene (TCE); Regulation Under the Toxic Substances Control Act (TSCA)""" The Harmonizing Environmental Analyses and Launching Therapeutic Hubs to Yield Bolstered Research And Innovation in Neurological Science (HEALTHY BRAINS) Act (to be reintroduced): creates a Centers of Excellence grant program within the National Institutes of Health to conduct and support of research, training, and health information dissemination with respect to environmental risk factors of neurodegenerative diseases, including Parkinsons disease.
S.925/H.R.2036 - Credit for Caring Act of 2025: seeks to amend the Internal Revenue Code of 1986 to provide a nonrefundable credit for working family caregivers.