RARE DISEASE COMPANY COALITION

Lobbying client · District of Columbia · filed 2025 to 2026

Healthcare

$470,000 Reported spend

7 Filings counted

1 Firms hired

9 Bills named

Spend is reported income plus in-house expenses across 7 filings. Everything on this page is grouped by the client's LDA id (66024), not by name.

Firms hired 1

RARE DISEASE COMPANY COALITION $470,000 7 filings

Bills named in these filings 9

HR 1262
Mikaela Naylon Give Kids a Chance Act

5 filings
HR 1414
Cameron’s Law

4 filings
HR 1
An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.

3 filings
HR 946
ORPHAN Cures Act

3 filings
HR 4758
Accelerating Kids’ Access to Care Act

1 filing
HR 7384
Creating Hope Reauthorization Act of 2024

1 filing
HR 1532
Scientific EXPERT Act of 2025

1 filing
HR 1762
Forest Service Accountability Act

1 filing
HR 7148
Consolidated Appropriations Act, 2026

1 filing

Reported by year 2 years

2026 $180,000 2 filings
2025 $290,000 5 filings

Issues lobbied 7

The count is how many filings named that issue area. A filing reports one lump figure covering every issue on it, so the money above cannot be split between them.

Agencies and chambers lobbied 6

HOUSE OF REPRESENTATIVES 6
SENATE 6
Centers For Medicare and Medicaid Services (CMS) 1
Food & Drug Administration (FDA) 1
U.S. Trade Representative (USTR) 1
White House Office 1

Recent filings 7 total

Q2

RARE DISEASE COMPANY COALITION

2nd Quarter (Apr 1 - June 30) 2026 · House · Senate · $70,000 expenses · posted Jul 16, 2026

View → Q1

RARE DISEASE COMPANY COALITION

1st Quarter (Jan 1 - Mar 31) 2026 · House · Senate · $110,000 expenses · posted Apr 20, 2026

View → Q4

RARE DISEASE COMPANY COALITION

4th Quarter (Oct 1 - Dec 31) 2025 · House · Senate · $70,000 expenses · posted Jan 20, 2026

View → Q3

RARE DISEASE COMPANY COALITION

3rd Quarter (July 1 - Sep 30) 2025 · House · Senate · $90,000 expenses · posted Oct 16, 2025

View → Q2

RARE DISEASE COMPANY COALITION

2nd Quarter (Apr 1 - June 30) 2025 · House · Senate · $70,000 expenses · posted Jul 18, 2025

View → 1A

RARE DISEASE COMPANY COALITION

1st Quarter (Jan 1 - Mar 31) 2025 · House · Senate · $60,000 expenses · posted Apr 21, 2025

View → RR

RARE DISEASE COMPANY COALITION

1st Quarter (Jan 1 - Mar 31) 2025 · posted Apr 18, 2025

View →

Source: federal Lobbying Disclosure Act filings, synced daily. Money is self-reported by the filer and often rounded. Lobbying is legal, disclosed activity.