All lobbying filings
RARE DISEASE COMPANY COALITION
Lobbying for RARE DISEASE COMPANY COALITION · Healthcare
Filing
4th Quarter - Report
Reporting period
4th Quarter 2025
Oct 1 - Dec 31 · Posted Jan 20, 2026
Expenses
$70,000.00
What this organization spent lobbying with its own staff.
Reported using A: the three
LDA methods count different costs, so an expenses figure is
not comparable across filers that used different ones.
Client based in
District of Columbia
Government bodies contacted
3
Bills named in this filing
1
Lobbying activity
2
BIS-2025-0022 - Rare Disease Exemption for Pharmaceutical Tariffs CMS-5545-P - Rare Disease Exemption from GLOBE Model CMS-5546-P - Rare Disease Exemption from GUARD Model
HR 1262 - Give Kids a Chance Act of 2025 S 932 - Give Kids a Chance Act of 2025 Rare Disease Exemption for Most Favored Nation Pricing Proposals