NATIONAL ORGANIZATION OF RARE DISORDERS, INC

Lobbying client · District of Columbia · filed 2025 to 2026

Patient advocacy group concerned with rare diseases

$130,000 Reported spend

6 Filings counted

1 Firms hired

0 Bills named

Spend is reported income plus in-house expenses across 6 filings. Everything on this page is grouped by the client's LDA id (68065), not by name.

Firms hired 1

JAMES P. KEESE $130,000 6 filings

Reported by year 2 years

2026 $60,000 2 filings
2025 $70,000 4 filings

Issues lobbied 3

The count is how many filings named that issue area. A filing reports one lump figure covering every issue on it, so the money above cannot be split between them.

Agencies and chambers lobbied 6

Centers For Disease Control & Prevention (CDC) 5
Food & Drug Administration (FDA) 5
Health & Human Services, Dept of (HHS) 5
HOUSE OF REPRESENTATIVES 5
Natl Institutes of Health (NIH) 5
SENATE 5

Recent filings 6 total

Q2

JAMES P. KEESE

2nd Quarter (Apr 1 - June 30) 2026 · House · Senate · $30,000 income · posted Jul 20, 2026

View → Q1

JAMES P. KEESE

1st Quarter (Jan 1 - Mar 31) 2026 · House · Senate · $30,000 income · posted Apr 20, 2026

View → Q4

JAMES P. KEESE

4th Quarter (Oct 1 - Dec 31) 2025 · House · Senate · $30,000 income · posted Jan 20, 2026

View → Q3

JAMES P. KEESE

3rd Quarter (July 1 - Sep 30) 2025 · House · Senate · $30,000 income · posted Oct 20, 2025

View → Q2

JAMES P. KEESE

2nd Quarter (Apr 1 - June 30) 2025 · House · Senate · $10,000 income · posted Aug 6, 2025

View → RR

JAMES P. KEESE

2nd Quarter (Apr 1 - June 30) 2025 · posted Jul 21, 2025

View →

Source: federal Lobbying Disclosure Act filings, synced daily. Money is self-reported by the filer and often rounded. Lobbying is legal, disclosed activity.