Filing
1st Quarter - Report
Lobbying activity
2
H. R. 4709 - Newborn Screening Saves Lives Act of 2025 - Support for advancing 21st century genetic screenings protocols for newborns and their families. Issues related to access and affordability for pediatric genetic tests for children and families nationwide.
Issues related to access and affordability for pediatric genetic tests for families with Medicaid and Marketplace coverage. Issues related to the FY27 Labor-HHS appropriations process - highlighting Genetic Testing Guidance for State Medicaid Programs report language. H.R. 7118 - Genomic Answers for Children's Health Act of 2026 - support for clarifying access to genomic sequencing for children enrolled in Medicaid who have a suspected rare disease or genetic disorder