THE ALS ASSOCIATION

H.R8490/S.4396 - Social Security Caregiver Credit Act - All provisions

H.R.9373 - Air Carrier Access Amendments Act of 2026 - Provisions relating to remedies and enforcement mechanisms for air passengers with disabilities.

S.3971 - Small Business Innovation and Economic Security Act - Provisions relating to the extension and enhancement of the SBIR and STTR programs through 2031, introducing new research security requirements, expanded funding opportunities, administrative streamlining, improved commercialization support, and strengthened data collection to better support small business innovation

H.R 4016 / S.2572 - Department of Defense Appropriations Act Requested the House and Senate Appropriations Defense Subcommittee provide at least $80 million for the ALS Research Program in fiscal year 2026 to allow the program to build on a solid foundation of promising preclinical research to increase the number of ALS clinical trials by funding its own early phase trials. H.R. 4121 / S.2256 - Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act, 2026 Requested the House and Senate Appropriations Agriculture Subcommittee provide at least $25 million authorized in the ACT for ALS Act (P.L. 1179-79) for research to speed the regulatory process for new ALS and rare disease therapies in fiscal year 2026. H.R. 5304 / S.2587 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2026 Requested that the House and Senate Appropriations LHHS Subcommittee provide at least $180 million for ALS research at NIH in fiscal year 2026 to attract the next generation of scientists, accelerate the discovery and development of new treatments and increase the number of ALS clinical trials. Requested at least $75,000,000 to implement the expanded access program established by the ACT for ALS Act (P.L. 117-79). Requested at least $15 million to continue CDCs National ALS Registry and Biorepository in fiscal year 2026 to help identify risk factors for ALS to reduce the number of new cases, connect patients with clinical trials, conduct surveillance of incidence and prevalence and biospecimens, and support research of ALS prevention in the military. H.R. 1 - One Big Beautiful Bill Act Discussions around the implementation of the bill to ensure the medically frail, SSDI beneficiaries and/or those with terminal illnesses do not need to recertify for Medicaid coverage.

H.R. 8205/S.4472 - Accelerating Access to Critical Therapies for ALS Reauthorization Act of 2026 - All provisions. H.R. 7779 - HEALTHY BRAINS Act - All Provisions H.R. 3864 - Protecting Health Care for All Patients Act of 2025 All provisions related to the banning of use of the quality-adjusted Life year valuation metric in coverage and payment determinations under federal health care programs. H.Res.449/S.Res 266 - Supports the designation of ALS Awareness Month - All Provisions. H.R.2560/S.830 - Lifespan Respite Care Reauthorization Act of 2025 - Provisions relating to amending the Public Health Service Act to extend funding for respite care through 2030 and broadening the definition of 'family caregiver' to include all unpaid individuals.

H.R. 7336/S.3763 - ALS Better Care Act - All provisions. H.R. 6423/S. 864 - HELP Copays Act -- Provisions related to health insurance plans requirement to apply payments made by or on behalf of plan enrollees toward a plan's cost-sharing requirements, i.e. a ban on copay-accumulator adjust programs. H.R. 4206 / S. 1261 - CONNECT for Health Act - Provisions related to permanent telehealth services in Medicare and interstate telehealth services. H.R. 2491 / S. 1227 - Alleviating Barriers for Caregivers (ABC) Act - All provisions. H.R. 2560 / S.830 - Lifespan Respite Care Reauthorization Act - All provisions H.R. 3514 / S. 1816 - Improving Seniors Timely Access to Care Act of 2025 All provisions relating to prior authorization usage under Medicare Advantage Plans. H.R. 6280/S. 3607- Genetic Counselor Services Act - All provisions H.R.2172/S.1058 - Preserving Patient Access to Home Infusion Act - All Provisions H.R.8375/S.4284 - Medicare Advantage Improvement Act of 2026 - Provisions related to expedited care authorizations, increased transparency and oversight, align coverage criteria with traditional Medicare, and strengthen beneficiary protections, in Medicare Advantage plans. H.R.8500 - Timely Access to Coverage Decisions Act of 2026 - All Provisions

H.R 1685 / S. 749 - Justice for ALS Veterans Act -- All provisions, including those extending Dependency and Indemnity Compensation payments to surviving spouses of veterans who die from ALS, regardless of how long a veteran had ALS prior to death. H.R. 6001 - Veterans with ALS Reporting Act - All provisions, including ALS prevention for the military and access to care for veterans living with ALS. H.R2055/S.611 - Caring for Survivors Act - All provisions. H.R.6047 - Sharri Briley and Eric Edmundson Veterans Benefits Expansion Act of 2026 - Provisions related to increases in dependency and indemnity compensation for surviving spouses of servicemembers with a 100% disabling condition. H.R.9237 - Take Care of Americas Veterans Act - Provisions in Sections 103 and 104 relating to Increases to dependency and indemnity compensation (DIC) for surviving spouses of veterans who had a 100% disabling condition AND changes to qualification for increased DIC payments for surviving spouses of veterans who pass from ALS regardless of how long they lived with the condition. S.3988 - Veterans STAND Act - Provisions relating to providing annual preventative health evaluations and increased access to assistive technologies for veterans with spinal cord injuries or disorders, with new reporting and consultation requirements to improve care and outcomes.

H.R.2036/S. 925 - Credit for Caring Act of 2025 - All provisions. H.R. 138/S.1565 - Lowering Costs for Caregivers Act - All provisions Clinical Trial Tax Credit (Draft legislation) - All provisions. H.R. 2320 - Mobility Means Freedom Tax Credit Act - All provisions

H.R.1672 - Maintaining Investment in New Innovation Act - All Provisions H.R.1492/S.832 - EPIC Act of 2025 - Discussion around encouraging innovation and research transparency for rare disease drugs.