Filing
1st Quarter - Report
Reporting period
1st Quarter 2025
Jan 1 - Mar 31 · Posted Apr 16, 2025
Expenses
$160,000.00
What this organization spent lobbying with its own staff.
Reported using A: the three
LDA methods count different costs, so an expenses figure is
not comparable across filers that used different ones.
Client based in
California
Government bodies contacted
4
Lobbying activity
6
Legislation regarding the Orphan Drug Act and rare disease diagnosis, treatment, and care. Legislation regarding kidney disease and in particular rare kidney disease. HR 1518, the New Era of Preventing End-Stage Kidney Disease Act
HR 946, Optimizing Research Progress Hope and New Cures (ORPHAN Cures Act)
HR 1262, S 932 Give Kids a Chance Act to renew PRV program
Regulations regarding transparency, reimbursement and care, particularly regarding rare disease.
S.1040, to prohibit product hopping and for other purposes
H.R. 1414, Cameron's Law to increase Orphan Drug Tax Credit to 50%