Filing
1st Quarter - Report
Lobbying activity
6
Legislation regarding the Orphan Drug Act and rare disease diagnosis, treatment, and care. Legislation regarding kidney disease and in particular rare kidney disease. HR 1518, the New Era of Preventing End-Stage Kidney Disease Act
HR 946, Optimizing Research Progress Hope and New Cures (ORPHAN Cures Act)
HR 1262, S 932 Give Kids a Chance Act to renew PRV program
Regulations regarding transparency, reimbursement and care, particularly regarding rare disease.
S.1040, to prohibit product hopping and for other purposes
H.R. 1414, Cameron's Law to increase Orphan Drug Tax Credit to 50%