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H.R. 6094 118th Congress House

Providing Realistic Opportunity To Equal and Comparable Treatment for Rare Act

Official title: To amend titles XVIII and XIX of the Social Security Act and title XXVII of the Public Health Service Act to refine the set of information sources for determin… Show full official titleShow less

Official title: To amend titles XVIII and XIX of the Social Security Act and title XXVII of the Public Health Service Act to refine the set of information sources for determining coverage of certain drugs and biologicals used in the treatment or management of a rare disease or condition, and for other purposes.

Introduced: October 26, 2023 Introduced by: Doris O. Matsui Democratic · California See on congress.gov
Health Health care costs and insuranceHealth care coverage and accessMedicaidMedicarePrescription drugs
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This bill died when the 118th Congress ended
It never became law before the 118th Congress (2023–2024) adjourned, and bills don't carry over to the next Congress. It would have to be reintroduced. You can still save it for reference, but it won't receive updates.
 Everywhere this bill has been 4 steps
Introduced
In committee
Reported out
Passed House
Passed Senate
To President
Became law
Dec 17, 2024
Referred to the Subcommittee on Health.
Nov 3, 2023
Referred to the Subcommittee on Health.
Oct 26, 2023
Referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
Oct 26, 2023
Introduced in House
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 Latest action December 17, 2024

Referred to the Subcommittee on Health.

 Plain-English summary Congressional Research Service

Providing Realistic Opportunity To Equal and Comparable Treatment for Rare Act or the PROTECT Rare Act

This bill provides for coverage under the Medicare prescription drug benefit, Medicaid, and private health insurance of certain drugs that are used to treat rare diseases or conditions (i.e., diseases or conditions that affect 200,000 or fewer individuals). Such drugs must be supported by peer-reviewed research or medical experts and must not have been reviewed unfavorably in specified compendia or used in a way that conflicts with approved labels.

 Bill text 1 version

Source documents hosted by congress.gov.

 Committees of jurisdiction 4
 Lobbying activity 1

Registered lobbyists who named this bill in their disclosure filings. Source: federal Lobbying Disclosure Act filings.

  • HARMONY BIOSCIENCES
    for HARMONY BIOSCIENCES · Pennsylvania · 1st Quarter 2025 (Jan 1 - Mar 31)

Bodies those filers lobbied

A filing lists the bills it worked on and the parts of government it contacted in separate sections, so these are the bodies those filers named anywhere in the filing, not a per-bill breakdown.

Cite this page click to expand
APA
U.S. Congress. (2026). H.R. 6094: Providing Realistic Opportunity To Equal and Comparable Treatment for Rare Act. 118th Congress. Open America. https://openamerica.io/bill/118-HR-6094/
MLA
"H.R. 6094: Providing Realistic Opportunity To Equal and Comparable Treatment for Rare Act." 118th Congress, 2026, Open America, https://openamerica.io/bill/118-HR-6094/.
Bluebook (legal)
H.R. 6094, 118th Cong. (2026), https://openamerica.io/bill/118-HR-6094/.
Markdown link
[H.R. 6094: Providing Realistic Opportunity To Equal and Comparable Treatment for Rare Act](https://openamerica.io/bill/118-HR-6094/)
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