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S 315 113th Congress Senate

Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014

Official title: A bill to reauthorize and extend the Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008.

Introduced: February 13, 2013 Introduced by: Klobuchar, Amy Democratic · Minnesota See on congress.gov
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This bill died when the 113th Congress ended
It never became law before the 113th Congress (2013–2014) adjourned, and bills don't carry over to the next Congress. It would have to be reintroduced. You can still save it for reference, but it won't receive updates.
 Everywhere this bill has been 5 steps
Introduced
In committee
Reported out
Passed House
Passed Senate
To President
Became law
Jul 23, 2014
Placed on Senate Legislative Calendar under General Orders. Calendar No. 478.
Jul 23, 2014
Committee on Health, Education, Labor, and Pensions. Reported by Senator Harkin with an amendment in the nature of a substitute and an amendment to the title. Without written report.
Jul 23, 2014
Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably.
Feb 13, 2013
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Feb 13, 2013
Introduced in Senate
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 Latest action July 23, 2014

Placed on Senate Legislative Calendar under General Orders. Calendar No. 478.

 Plain-English summary Congressional Research Service

Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014 - (Sec. 2) Amends the Public Health Service Act to revise the muscular dystrophy research program of the National Institutes of Health (NIH).

Expands the range of forms of muscular dystrophy included within the program. Requires the research conducted through Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers to include cardiac and pulmonary function research. Requires the Director of NIH to ensure the sharing of data between such centers.

Revises the composition of the Muscular Dystrophy Coordinating Committee (MDCC) to include the Social Security Administration and the United States Administration for Community Living.

Requires the MDCC to meet at least two times per year. Requires the MDCC Action Plan to provide for: (1) health economic studies to demonstrate the cost-effectiveness of providing independent living resources and support to patients with various forms of muscular dystrophy, (2) studies to determine optimal clinical care interventions for adults with various forms of muscular dystrophy, and (3) the development of clinical interventions to improve the health of adults with various forms of muscular dystrophy.

(Sec. 3) Requires the Secretary of Health and Human Services (HHS), in carrying out epidemiological activities regarding Duchenne and other forms of muscular dystrophy, to ensure that data are representative of all affected populations and shared in a timely manner.

(Sec. 4) Amends the Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2001 to authorize the Secretary to cooperate with professional organizations and the patient community in the development and issuance of care considerations, including acute care considerations, for pediatric and adult muscular dystrophy patients. Authorizes the Secretary, in developing and updating care considerations, to incorporate strategies specifically responding to the findings of the national transitions survey of minority, young adult, and adult communities of muscular dystrophy patients.
 Related & companion bills 1
 Bill text 2 versions

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 Committees of jurisdiction 1
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APA
U.S. Congress. (2026). S. 315: Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014. 113th Congress. Open America. https://openamerica.io/bill/113-S-315/
MLA
"S. 315: Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014." 113th Congress, 2026, Open America, https://openamerica.io/bill/113-S-315/.
Bluebook (legal)
S. 315, 113th Cong. (2026), https://openamerica.io/bill/113-S-315/.
Markdown link
[S. 315: Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014](https://openamerica.io/bill/113-S-315/)
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