HR 594 113th Congress House

Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014

Official title: To amend the Public Health Service Act relating to Federal research on muscular dystrophy, and for other purposes.

Introduced: April 26, 2013 See on congress.gov

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Everywhere this bill has been 26 steps

Introduced

In committee

Reported out

Passed House

Passed Senate

To President

Became law

Sep 26, 2014

Became Public Law No: 113-166.

Sep 26, 2014

Signed by President.

Sep 23, 2014

Presented to President.

Sep 19, 2014

Message on Senate action sent to the House.

Sep 18, 2014

Passed Senate without amendment by Unanimous Consent. (consideration: CR S5862)

Sep 18, 2014

Passed/agreed to in Senate: Passed Senate without amendment by Unanimous Consent.(consideration: CR S5862)

Aug 1, 2014

Read twice. Placed on Senate Legislative Calendar under General Orders. Calendar No. 529.

Jul 29, 2014

Received in the Senate.

Jul 28, 2014

The Speaker announced the title of H.R. 594 was amended in the form at the desk. Agreed to without objection.

Jul 28, 2014

The title of the measure was amended. Agreed to without objection.

Jul 28, 2014

Motion to reconsider laid on the table Agreed to without objection.

Jul 28, 2014

On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote. (text: CR H6933)

Jul 28, 2014

Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote.(text: CR H6933)

Jul 28, 2014

DEBATE - The House proceeded with forty minutes of debate on H.R. 594.

Jul 28, 2014

Considered under suspension of the rules. (consideration: CR H6933-6935)

Jul 28, 2014

Mr. Burgess moved to suspend the rules and pass the bill, as amended.

Jul 24, 2014

Placed on the Union Calendar, Calendar No. 416.

Jul 24, 2014

Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 113-556.

Jul 15, 2014

Ordered to be Reported (Amended) by Voice Vote.

Jul 15, 2014

Committee Consideration and Mark-up Session Held.

Jul 14, 2014

Committee Consideration and Mark-up Session Held.

Jun 19, 2014

Forwarded by Subcommittee to Full Committee (Amended) by Unanimous Consent .

Jun 19, 2014

Subcommittee Consideration and Mark-up Session Held.

Feb 8, 2013

Referred to the Subcommittee on Health.

Feb 8, 2013

Referred to the House Committee on Energy and Commerce.

Feb 8, 2013

Introduced in House

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Latest action September 26, 2014

Became Public Law No: 113-166.

Plain-English summary Congressional Research Service

(This measure has not been amended since it was reported to the House on July 24, 2014. The summary of that version is repeated here.)

Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014 - (Sec. 2) Amends the Public Health Service Act to revise the muscular dystrophy research program of the National Institutes of Health (NIH).

Expands the range of forms of muscular dystrophy included within the program. Requires the research conducted through Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers to include cardiac and pulmonary function research. Requires the Director of NIH to ensure the sharing of data between such centers.

Revises the composition of the Muscular Dystrophy Coordinating Committee (MDCC) to include the Social Security Administration and the United States Administration for Community Living.

Requires the MDCC to meet at least two times per year. Requires the MDCC Action Plan to provide for: (1) health economic studies to demonstrate the cost-effectiveness of providing independent living resources and support to patients with various forms of muscular dystrophy, (2) studies to determine optimal clinical care interventions for adults with various forms of muscular dystrophy, and (3) the development of clinical interventions to improve the health of adults with various forms of muscular dystrophy.

(Sec. 3) Requires the Secretary of Health and Human Services (HHS), in carrying out epidemiological activities regarding Duchenne and other forms of muscular dystrophy, to ensure that data are representative of all affected populations and shared in a timely manner.

(Sec. 4) Amends the Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2001 to authorize the Secretary to cooperate with professional organizations and the patient community in the development and issuance of care considerations, including acute care considerations, for pediatric and adult muscular dystrophy patients. Authorizes the Secretary, in developing and updating care considerations, to incorporate strategies specifically responding to the findings of the national transitions survey of minority, young adult, and adult communities of muscular dystrophy patients.

Related & companion bills 1

Bill text 6 versions

Engrossed in House Formatted Text PDF Formatted XML
Enrolled Bill Formatted Text PDF Formatted XML
Introduced in House Formatted Text PDF Formatted XML
Placed on Calendar Senate Formatted Text PDF Formatted XML
Public Law Formatted Text PDF United States Legislative Markup
Reported in House Formatted Text PDF Formatted XML

Source documents hosted by congress.gov.

Committees of jurisdiction 2

Energy and Commerce Committee
House of Representatives
Health Subcommittee
House of Representatives · subcommittee of Energy and Commerce Committee

Cosponsors 74

Massachusetts · Jul 16, 2014

Smith, Christopher H.

New Jersey · May 28, 2014

Delaney, John

· Apr 30, 2014

Frankel, Lois

Florida · Apr 28, 2014

Wilson, Joe

South Carolina · Apr 28, 2014

Lynch, Stephen F.

Massachusetts · Mar 27, 2014

Carson, André

Indiana · Mar 10, 2014

SENSENBRENNER, F.

· Mar 10, 2014

Daines, Steve

Montana · Mar 5, 2014

WOLF, FRANK

· Mar 5, 2014

Clark, Katherine M.

Massachusetts · Feb 26, 2014

Keating, William R.

Massachusetts · Feb 26, 2014

Washington · Feb 4, 2014

DUNCAN, JOHN

· Jun 28, 2013

Lofgren, Zoe

California · Jun 28, 2013

Tennessee · Jun 3, 2013

Tonko, Paul

New York · Jun 3, 2013

Huffman, Jared

California · May 7, 2013

CULBERSON, JOHN

· Apr 26, 2013

Van Hollen, Chris

Maryland · Apr 26, 2013

Clarke, Yvette D.

New York · Apr 24, 2013

Bishop, Timothy

· Apr 18, 2013

Hudson, Richard

North Carolina · Apr 9, 2013

Schakowsky, Janice D.

Illinois · Apr 9, 2013

Forbes, J.

· Mar 21, 2013

Himes, James A.

Connecticut · Mar 21, 2013

McCollum, Betty

Minnesota · Mar 19, 2013

Colorado · Mar 12, 2013

Guthrie, Brett

Kentucky · Mar 12, 2013

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APA

U.S. Congress. (2026). H.R. 594: Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014. 113th Congress. Open America. https://openamerica.io/bill/113-HR-594/

MLA

"H.R. 594: Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014." 113th Congress, 2026, Open America, https://openamerica.io/bill/113-HR-594/.

Bluebook (legal)

H.R. 594, 113th Cong. (2026), https://openamerica.io/bill/113-HR-594/.

Markdown link

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