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Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014

Introduced: February 8, 2013 See on congress.gov

Everywhere this bill has been 26 steps

Introduced

In committee

Reported out

Passed House

Passed Senate

To President

Became law

Sep 26, 2014

Became Public Law No: 113-166.

Sep 26, 2014

Signed by President.

Sep 23, 2014

Presented to President.

Sep 19, 2014

Message on Senate action sent to the House.

Sep 18, 2014

Passed Senate without amendment by Unanimous Consent. (consideration: CR S5862)

Sep 18, 2014

Passed/agreed to in Senate: Passed Senate without amendment by Unanimous Consent.(consideration: CR S5862)

Aug 1, 2014

Read twice. Placed on Senate Legislative Calendar under General Orders. Calendar No. 529.

Jul 29, 2014

Received in the Senate.

Jul 28, 2014

The Speaker announced the title of H.R. 594 was amended in the form at the desk. Agreed to without objection.

Jul 28, 2014

The title of the measure was amended. Agreed to without objection.

Jul 28, 2014

Motion to reconsider laid on the table Agreed to without objection.

Jul 28, 2014

On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote. (text: CR H6933)

Jul 28, 2014

Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote.(text: CR H6933)

Jul 28, 2014

DEBATE - The House proceeded with forty minutes of debate on H.R. 594.

Jul 28, 2014

Considered under suspension of the rules. (consideration: CR H6933-6935)

Jul 28, 2014

Mr. Burgess moved to suspend the rules and pass the bill, as amended.

Jul 24, 2014

Placed on the Union Calendar, Calendar No. 416.

Jul 24, 2014

Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 113-556.

Jul 15, 2014

Ordered to be Reported (Amended) by Voice Vote.

Jul 15, 2014

Committee Consideration and Mark-up Session Held.

Jul 14, 2014

Committee Consideration and Mark-up Session Held.

Jun 19, 2014

Forwarded by Subcommittee to Full Committee (Amended) by Unanimous Consent .

Jun 19, 2014

Subcommittee Consideration and Mark-up Session Held.

Feb 8, 2013

Referred to the Subcommittee on Health.

Feb 8, 2013

Referred to the House Committee on Energy and Commerce.

Feb 8, 2013

Introduced in House

Plain-English summary Congressional Research Service

(This measure has not been amended since it was reported to the House on July 24, 2014. The summary of that version is repeated here.)

Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014 - (Sec. 2) Amends the Public Health Service Act to revise the muscular dystrophy research program of the National Institutes of Health (NIH).

Expands the range of forms of muscular dystrophy included within the program. Requires the research conducted through Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers to include cardiac and pulmonary function research. Requires the Director of NIH to ensure the sharing of data between such centers.

Revises the composition of the Muscular Dystrophy Coordinating Committee (MDCC) to include the Social Security Administration and the United States Administration for Community Living.

Requires the MDCC to meet at least two times per year. Requires the MDCC Action Plan to provide for: (1) health economic studies to demonstrate the cost-effectiveness of providing independent living resources and support to patients with various forms of muscular dystrophy, (2) studies to determine optimal clinical care interventions for adults with various forms of muscular dystrophy, and (3) the development of clinical interventions to improve the health of adults with various forms of muscular dystrophy.

(Sec. 3) Requires the Secretary of Health and Human Services (HHS), in carrying out epidemiological activities regarding Duchenne and other forms of muscular dystrophy, to ensure that data are representative of all affected populations and shared in a timely manner.

(Sec. 4) Amends the Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2001 to authorize the Secretary to cooperate with professional organizations and the patient community in the development and issuance of care considerations, including acute care considerations, for pediatric and adult muscular dystrophy patients. Authorizes the Secretary, in developing and updating care considerations, to incorporate strategies specifically responding to the findings of the national transitions survey of minority, young adult, and adult communities of muscular dystrophy patients.

What's happening now September 26, 2014

Became Public Law No: 113-166.

Committees of jurisdiction 2