NATIONAL MULTIPLE SCLEROSIS SOCIETY
Lobbying for NATIONAL MULTIPLE SCLEROSIS SOCIETY
H.R.8469 - Making appropriations for military construction, the Department of Veterans Affairs, and related agencies for the fiscal year ending September 30, 2027, and for other purposes. H.R.9260 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2027 H.R.9495 - Department of Defense Appropriations Act, 2027 Advocated for funding levels in FY27 appropriations bills: $51.303 billion for the National Institutes of Health (NIH) for fiscal year (FY) 2027. In April joined with coalition partners on a Congressional letter requesting $90.47 Million for the NIEHS Superfund Program, including the SRP and WTP.These programs are housed in NIH. Supporting established funding levels for Medicare and Medicaid and protection of Medicaid's current financing structure. DoD- Working to ensure $1.626 billion in funding for the Congressionally Directed MS Research Program in FY 27. Specifically advocating for $22 million for the MS Research Program.
H.R. 1 - One Big Beautiful Bill Act (implementation) H.R. 1509 - Accelerating Kids' Access to Care Act of 2025 H.R. 2036 - Credit for Caring Act of 2025 H.R. 2079 - Insurance Fraud Accountability Act H.R. 2320 - Mobility Means Freedom Tax Credit Act H.R. 2560 - Lifespan Respite Care Reauthorization Act of 2025 H.R. 3417 - Websites and Software Applications Accessibility Act of 2025 H.R. 3514 - Improving Seniors' Timely Access to Care Act of 2025 H.R. 3907 - ENROLL Act of 2025 H.R.4317 - PBM Reform Act of 2025 H.R.5081 - Telehealth Modernization Act H.R. 5940, the Seniors Deserve Streamlined Medical Approvals for Timely, Efficient, Recovery (SMARTER) Care Act of 2025 H.R.6183 - To amend the Internal Revenue Code of 1986 to reform certain rules related to health savings accounts. H.R.6837 - To amend the Employee Retirement Income Security Act of 1974 to ensure that pharmacy benefit managers are considered fiduciaries, and for other purposes. H.R. 8270: Every Dollar Counts Act of 2026 S. 752 - Accelerating Kids' Access to Care Act S. 830 - Lifespan Respite Care Reauthorization Act of 2025 S. 925 - Credit for Caring Act of 2025 S. 976 - Insurance Fraud Accountability Act S. 1816 - Improving Seniors' Timely Access to Care Act of 2025 S. 2024 - ENROLL Act of 2025 S. 3549 - PBM FAIR Act S. 3386 - Health Care Freedom for Patients Act of 2025 National MS Society submitted comments to the Centers for Medicare and Medicaid Service's (CMS) request for information on essential health benefits (EHB) urging the agency to monitor the provision of EHB as well and to update and strengthen benefit standards The National MS Society responded to CMS request for information (RFI) around implementing certain pharmacy benefit manager (PBM) reforms passed by Congress in January 2026. The Society comments focused on the need to better understand the complexities of the drug supply chain system by collecting as much information as possible from the broadest number of stakeholders. Additionally, comments outlined the access concerns many people living with MS face as a result of the system as it currently stands. The National MS commented on the Calendar Year 2026 Hospital Outpatient Prospective Payment System (OPPS) Proposed Rule, to preserve patient access to affordable outpatient care and ensure adequate reimbursement policies that support access to infusion therapies, specialty services, and other critical treatments for people living with MS
H.R.1 - One Big Beautiful Bill Act Continued to advocate on H.R.1 implementation. In July, the National MS Society commented on CMSs Medicaid Community Engagement Requirement centering around administrative barriers that could jeopardize health coverage for people living with MS and other chronic conditions, and urging CMS to maintain robust protections and exemptions to ensure uninterrupted access to care and treatment.
H.R.1 - One Big Beautiful Bill Act H.R.7779 - Healthy Brains Act of 2026 H.R.9260 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2027 In July, the National MS Society submitted comments on the Office of Management and Budgets (OMB) proposed Regulation for Federal Financial Assistance, expressing concern over impacts the rule may have on grant review and federal research investments.