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All lobbying filings

CURE SMA

Lobbying for CURE SMA

 Filing 4th Quarter - Report
4th Quarter (Oct 1 - Dec 31) 2025 · Illinois · House · Senate · $75,000.00 expenses · posted Jan 13, 2026

Official filing document

 Bills named in this filing 18
  • HR 1261
    Land and Water Conservation Fund Water Amendments Act of 2025
  • S 932
    Give Kids a Chance Act of 2025
  • HR 1
    An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.
  • HR 1509
    Accelerating Kids’ Access to Care Act of 2025
  • S 752
    Accelerating Kids’ Access to Care Act
  • HR 2540
    SSI Savings Penalty Elimination Act
  • S 1234
    SSI Savings Penalty Elimination Act
  • HR 1389
    Marriage Equality for Disabled Adults Act
  • HR 320
    Make Marriage Great Again Act of 2025
  • S 73
    EMPSA
  • HR 1436
    ENABLE Act
  • S 627
    ENABLE Act
  • HR 3906
    Medical Research for Our Troops Act
  • HR 2320
    Mobility Means Freedom Tax Credit Act
  • HR 2598
    IDEA Full Funding Act
  • S 1277
    IDEA Full Funding Act
  • HR 3990
    Disaster Relief Medicaid Act
  • S 2071
    Disaster Relief Medicaid Act
 Lobbying activity 12
Health Issues

Research into spinal muscular atrophy, timely access to care, treatments, medical devices, and home and community-based services, Give Kids a Chance Act (H.R.1261/ S.932- FDA Pediatric Priority Review Voucher Program), H.R. 1, DOD Peer-Reviewed Medical Research Program, Labor-Health and Human Services, and Education Appropriations bill, Family Caregiver Awareness, Resources, and Education (CARE) Partnerships Act, Pediatric Palliative Care Homes, Advisory Committee on Heritable Disorders in Newborns and Children, National Institute on Disability, Independent Living, and Rehabilitation Research funding, Coverage of Standing Systems in Group 3 Power Wheelchair, Competitive Bidding for Tracheostomy, Ostomy and Urological Supplies; FDA Rare Disease Patient Listening Session, Coverage of Respiratory Assist Devices (RADs) and Home Mechanical Ventilators (HMVs), Accelerating Kids Access to Care Act (H.R. 1509/S. 752, National Institutes of Health funding; Medicaid home and community-based services, Public Law 119-21 Medicaid Community Engagement Requirements - disability and medically frail definition

Budget/Appropriations

2025 Budget Resolution, National Institutes of Health research into spinal muscular atrophy, U.S. Department of Defense Peer-Reviewed Medical Research in spinal muscular atrophy, Medicaid home and community-based services, housing (Sec. 811 Housing for People with Disabilities & Mainstream Housing Choice Vouchers), Defense Health Research Programs (Congressionally Directed Medical Research Programs), National Institute on Disability, Independent Living, and Rehabilitation Research funding, Labor-HHS-Education Appropriations bill, Transportation-HUD Appropriations bill, Defense Appropriations bill, Department of Education Office of Special Education and Rehabilitative Services staffing, Congressionally Directed Medical Research Program funding

Civil Rights/Civil Liberties

Supplemental Security Income Savings Penalty Elimination Act (H.R.2540/ S.1234), disability marriage penalty, Marriage Equality for Disabled Adults Act (H.R. 1389), Eliminating the Marriage Penalty in SSI Act (H.R. 320/ S.73), home and community-based services, Individuals with Disabilities Act (P.L. 101-336), ENABLE Act (H.R.1436/S.627), Coverage of Standing Systems in Power Wheelchairs, Adult Changing Tables at U.S. Capitol, Department of Education Office of Special Education and Rehabilitative Services staffing and enforcement, Public Law 119-21 Medicaid Community Engagement Requirements - disability and medically frail definition

Aviation/Airlines/Airports

FAA Reauthorization Act of 2024 (P.L. 118-63); Air Carrier Access Act (P.L. 99-435), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Final Rule, "Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Rule II, Transportation-HUD Appropriations bill

Defense

U.S. Department of Defense Peer-Reviewed Medical Research Program Research in Spinal Muscular Atrophy, Defense Health Research Programs (Congressionally Directed Medical Research Programs), Medical Research for Our Troops Act (H.R. 3906)

Housing

Transportation-HUD Appropriations bill, housing for people with disabilities (Sec. 811 Housing for People with Disabilities & Mainstream Housing Choice Vouchers)

Medical/Disease Research/Clinical Labs

medical research in spinal muscular atrophy, National Institutes of Health funding, U.S. Department of Defense peer reviewed research in spinal muscular atrophy, U.S. Department of Defense Congressionally Directed Medical Research Program, Medical Research for Our Troops Act (H.R. 3906)

Medicare/Medicaid

Medicaid home and community-based services, Medicaid caregiving services, Medicaid funding, 2025 Budget Resolution, durable medical equipment, Pediatric Palliative Care Homes, H.R. 1, Think Differently Database Act (P.L. 118-225), Labor-HHS-Education Appropriations bill, Public Law 119-21Medicaid Community Engagement Requirements

Taxation/Internal Revenue Code

ENABLE Act (H.R.1436/ S.627), Mobility Means Freedom Act (H.R.2320), Achieving a Better Life Experience (ABLE) Act (P.L. 113-295), H.R. 1

Transportation

FAA Reauthorization Act of 2024 (P.L. 118-63); Air Carrier Access Act (P.L. 99-435), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Final Rule, Disability Access to Transportation Act, accessibility in community transportation, Automated Vehicle (AV) Deployment and Research, Transportation-HUD Appropriations bill

Education

Labor, Health and Human Services, and Education Appropriations bill; IDEA Full Funding Act (H.R.2598/ S.1277), IDEA enforcement and oversight, Department of Education Office of Special Education and Rehabilitative Services staffing and enforcement

Disaster Planning/Emergencies

Disaster Relief Medicaid Act (H.R.3990/ S.2071), disaster planning and readiness assistance for individuals with disabilities

Source: federal Lobbying Disclosure Act filing. Bills are parsed from the activity descriptions.

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