AMERICAN SOCIETY OF NEPHROLOGY

-Expanding Support for Living Donors Act (H.R. 7868) Legislation to expand how much living donors can be reimbursed and to increase the threshold for income-based qualification -Living Donor Protection Act (H.R. 4583) and related FMLA bill (H.R. 4582 and S. 1552). Clarifies and strengthens protections for Americans who donate an organ. -Concurrent Care for Comfort Act (HR 8367) and related policy concepts regarding helping patients on dialysis nearing end of life also access hospice care -Home Dialysis Improvement Act (HR 8875) and related policy concepts helping more patients consider electing home dialysis -Kidney Disease Education Expansion Act of 2026 (H.R. 9509) and related policy concepts to increase earlier upstream intervention to slow the progression of kidney disease, including screening and diagnosis -KIDNEY Remote Monitoring Act (HR 8319) -Living Organ Volunteer Engagement (LOVE) Act (H.R. 7581) and related concepts that could be clarified administratively -Called for continued focus on modernizing the U.S. transplant system, including implementing the 2023 Securing the U.S. OPTN Act -Called for the creation of an Officer of Kidney Health and Transplantation within the immediate office of the secretary of HHS (to coordinate kidney health care, research, and data-related efforts across the numerous HHS agencies with a role in kidney health) -Urged HHS to ensure kidney health data remains accessible and complete, as well as advancing data-sharing, data standards, and interoperability -Encouraged CMMI to develop a subsequent kidney care focused model, building on the successes and lessons of the CKCC model, including a focus on upstream kidney care and earlier intervention -Asked questions about the adequacy of kidney patient access to specialized kidney and transplant care in MA plans -Discussed importance of greater emphasis on kidney health, prevention, and earlier disease detection and intervention -Encouraged support for KidneyX

-$51.303B in appropriations for NIH in FY27 (to support investments in basic, clinical, translational, and other health-related research activities) -$1 billion in appropriations for kidney research at NIDDK within the overall NIDDK FY27 appropriation, implementing the recommendations of the Transforming Kidney Health Research report -$25M in appropriations for HHS in FY27 to support KidneyX (public-private partnership to catalyze innovation in kidney disease prevention, diagnosis, and treatment through a series of prize competitions) -Called for significant revision or recision of the proposed Regulation for Federal Financial Assistance