PARKINSON'S FOUNDATION
Lobbying for PARKINSON'S FOUNDATION · Non profit focused on improving care and advancing research towards a cure for Parkinson's
Parkinson's health issues including research, care, data, costs, and accessibility of treatments. Parkinson's related programs at the Department of Health and Human Services, Food and Drug Administration, National Institutes of Health, Centers for Disease Control and Prevention. Implementation of the Dr. Emmanuel Bilirakis and Honorable Jennifer Wexton National Plan to End Parkinsons Act (Public Law No: 118-66). H.R. 7779, the Harmonizing Environmental Analyses and Launching Therapeutic Hubs to Yield Bolstered Research And Innovation in Neurological Science (HEALTHY BRAINS) Act S.1565 | H.R.138, the Lowering Costs for Caregivers Act S.3607 | H.R.6280, the Access to Genetic Counselor Services Act of 2026
Efforts to reduce toxic exposures that are risk factors for Parkinson's, including Trichloroethylene (TCE) and paraquat. Banning paraquat, which is a risk factor for Parkinson's, and supporting the Environmental Protection Agency's reevaluation of its safety. H.R. 7779, the Harmonizing Environmental Analyses and Launching Therapeutic Hubs to Yield Bolstered Research And Innovation in Neurological Science (HEALTHY BRAINS) Act. H.R. 9171, language banning paraquat within the FY 2027 Interior, Environment, and Related Agencies Appropriations bill. H.R.9357, Paraquat Prevention Act.
Increased funding for Parkinson's related programs. FY 2027 Appropriations bills, including funding requests for Parkinson's research and programs within. H.R.9495, the Department of Defense within the FY 2027 Department of Defense Appropriation bill. H.R.9260, the National Institute of Health and Centers for Disease Control and Prevention within the FY 2027 Labor, Health and Human Services, Education, and Related Agencies Appropriation bill. H.R.8646, the Food and Drug Administration within the FY 2027 Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriation bill. H.R.8469, the Department of Veterans Affairs within the FY 2027 Military Construction, Veterans Affairs, and Related Agencies Appropriation bill. H.R.9171, the Agency for Toxic Substances and Disease Registry Funding within the FY 2027 Interior, Environment, and Related Agencies Appropriations bill. OMB-2026-0034, Regulation for Federal Financial Assistance, the Office of Management and Budget's rule that revises guidance for federal funding, grants, cooperative agreements, and other forms of assistance.
Efforts to reduce toxic exposures in agriculture settings that are risk factors for Parkinson's, including Trichloroethylene (TCE) and paraquat. Banning paraquat, which is a risk factor for Parkinson's, and supporting the Environmental Protection Agency's reevaluation of its safety. H.R.7567, the Farm, Food, and National Security Act of 2026. Proposed pesticide preemption provisions that would impact the ability of state and local governments to take action to protect human health. H.R. 9171, language banning paraquat within the FY 2027 Interior, Environment, and Related Agencies Appropriations bill. H.R.9357, Paraquat Prevention Act.
Parkinson's related programs at the Department of Veterans Affairs, including the Parkinson's Disease Research, Education and Clinical Centers (PADRECCs) and VA Neurology Centers of Excellence. H.R.8469, the Department of Veterans Affairs within the FY 2027 Military Construction, Veterans Affairs, and Related Agencies Appropriation bill. H.R. 9150, the Boxing Therapy for Parkinson's Access Act. Implementation of the Sergeant First Class Heath Robinson Honoring our Promise to Address Comprehensive Toxics (PACT) Act.
Parkinson's health issues related to Medicare/Medicaid coverage, accessibility, and remote monitoring. CMS implementation of Public Law 119-21 on work requirements, including the definition of medical frailty. CMS-1848-P, Medicare and Medicaid Programs; CY 2027 Payment Policies Under the Physician Fee Schedule and Other Changes to Part B Payment and Coverage Policies; Medicare Shared Savings Program Requirements; and Medicare Prescription Drug Inflation Rebate Program. This rule would make changes to CMS's remote monitoring policy. CMS-1850-P, Calendar Year 2027 Hospital Outpatient Prospective Payment System and Ambulatory Surgical Center Payment System Proposed Rule, a proposed rule which would expand the hospital outpatient department prior authorization process to additional botulinum toxin injection service.
Parkinson's disease-related and general medical/disease research funding and clinical trials. OMB-2026-0034, Regulation for Federal Financial Assistance, the Office of Management and Budget's rule that revises guidance for federal funding, grants, cooperative agreements, and other forms of assistance. H.R. 3521 | S. 4440, Clinical Trial Modernization Act.
Clinical trials, medication affordability, and medication access for people with Parkinson's. H.R. 3521 | S. 4440, Clinical Trial Modernization Act.
H1-B visa rules that affect the health care workforce, physician shortages, and physician recruitment and retainment. These issues impact accesses to care for people with Parkinson's. DHS RIN 1615-AD20 / Docket No. USCIS-2026-0298: Fee for Certain H1-B Petitions, which would impose a fee for all H-1B cap-subject petitions, including those eligible for the advanced degree exemption.