NATIONAL MULTIPLE SCLEROSIS SOCIETY
Lobbying for NATIONAL MULTIPLE SCLEROSIS SOCIETY
H.R.8469 - Making appropriations for military construction, the Department of Veterans Affairs, and related agencies for the fiscal year ending September 30, 2027, and for other purposes. H.R.9260 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2027 H.R.9495 - Department of Defense Appropriations Act, 2027 Advocated for funding levels in FY27 appropriations bills: $51.303 billion for the National Institutes of Health (NIH) for fiscal year (FY) 2027. In April joined with coalition partners on a Congressional letter requesting $90.47 Million for the NIEHS Superfund Program, including the SRP and WTP.These programs are housed in NIH. Supporting established funding levels for Medicare and Medicaid and protection of Medicaid's current financing structure. DoD- Working to ensure $1.626 billion in funding for the Congressionally Directed MS Research Program in FY 27. Specifically advocating for $22 million for the MS Research Program. In May, joined with coalition partners to thank SAC and HAC LHHS committees for including provisions aimed at safeguarding public health investments. Additionally joined with coalition partners on a letter to Defense committee leadership to increase funding for the Congressionally Directed Medical Research Programs (CDMRP) at the Department of Defense (DoD).
H.R. 1 - One Big Beautiful Bill Act (implementation) H.R. 1509 - Accelerating Kids' Access to Care Act of 2025 H.R. 2036 - Credit for Caring Act of 2025 H.R. 2079 - Insurance Fraud Accountability Act H.R. 2320 - Mobility Means Freedom Tax Credit Act H.R. 2560 - Lifespan Respite Care Reauthorization Act of 2025 H.R. 3417 - Websites and Software Applications Accessibility Act of 2025 H.R. 3514 - Improving Seniors' Timely Access to Care Act of 2025 H.R. 3907 - ENROLL Act of 2025 H.R.4317 - PBM Reform Act of 2025 H.R.5081 - Telehealth Modernization Act H.R. 5940, the Seniors Deserve Streamlined Medical Approvals for Timely, Efficient, Recovery (SMARTER) Care Act of 2025 H.R.6183 - To amend the Internal Revenue Code of 1986 to reform certain rules related to health savings accounts. H.R.6837 - To amend the Employee Retirement Income Security Act of 1974 to ensure that pharmacy benefit managers are considered fiduciaries, and for other purposes. H.R. 8270: Every Dollar Counts Act of 2026 S. 752 - Accelerating Kids' Access to Care Act S. 830 - Lifespan Respite Care Reauthorization Act of 2025 S. 925 - Credit for Caring Act of 2025 S. 976 - Insurance Fraud Accountability Act S. 1816 - Improving Seniors' Timely Access to Care Act of 2025 S. 2024 - ENROLL Act of 2025 S. 3549 - PBM FAIR Act S. 3386 - Health Care Freedom for Patients Act of 2025 Submitted comments to Department of Labor on its proposed rule: Improving Transparency Into Pharmacy Benefit Manager Fee Disclosure. Submitted comments to the Food and Drug Administration (FDA) on the Impacts of Patient-Focused Drug Development Meetings. The comments emphasized the meetings are of critical importance for capturing meaningful, disease-specific patient input at scale.
H.R.1 - One Big Beautiful Bill Act Continued to advocate on H.R.1 implementation. Submitted and joined coalition comments to CMS on the proposed rule on Interoperability Standards and Prior Authorization for Drugs. The aimed looked to modernize prior authorization processes and improve interoperability across the healthcare system. Joined with coalition partners to respond to a pair of proposed Local Coverage Determinations (LCDs) and the impacts how it would impact how power seat elevation systems are covered under Medicare. In May, Joined a coalition letter to Congress requesting outreach to CMS to encourage the agency to rescind the Low Vision Aid Exclusion under the Medicare regulations.
H.R.1 - One Big Beautiful Bill Act H.R.7779 - Healthy Brains Act of 2026 H.R.9260 - Departments of Labor, Health and Human Services, and Education, and Related Agencies Appropriations Act, 2027 Over the course of the last quarter joined with various coalition partners to advocate for NIH funding grants for medical research. Submitted comments to the National Institutes of Health on the agency's request for feedback on its Framework for the next NIH-Wide Strategic Plan.
H.R. 9373: Air Carrier Access Amendments Act of 2026 S. 4829: Air Carrier Access Amendments Act In April joined with coalition partners a letter to the Department Of Transportation requesting updates on the status of DOTs implementation of the disability-related provisions of the FAA Reauthorization Act of 2024 and urging DOT to meet the requirements specified by Congress.