MUSCULAR DYSTROPHY ASSOCIATION, INC.

Submitted MDA Comments to Office of Federal Contractor Compliance Programs, U.S. Department of Labor re: Modifications to the Regulations Implementing Section 503 of the Rehabilitation Act of 1973, as Amended

Opposed the One Big Beautiful Bill Act Supported the Accelerating Kids' Access to Care Act Supported a joint request for Fiscal Year 2026 Appropriations for ALS Programs Supported Pharmacy Benefit Manager (PBM) Reform Patient Priorities Expressed opposition to effort that caps indirect costs in NIH grants to 15% Supported efforts to add FSHD to the Peer Reviewed Medical Research Program Supported the reauthorization of the Rare Pediatric Disease PRV Program as part of the Gives Kids a Chance Act Continued efforts to reauthorize the ACT for ALS Supported the reintroduction of the MVP Act Supported the reintroduction of the Patient Access Act Supported the introduction of legislation that would better facilitate wheelchair repair Supported the ABC Act Supported legislation that increases access to home and community-based services Supported the HEARD Act Joined Coalition Comments on Repealing H.R. 1 Health Provisions or Medicaid Provisions and Extending APTCs Joined Coalition Comments Urging Pharmacy Benefit Manager (PBM) Reforms Joined Coalition Comments in Opposition to CMS/OMB Proposal to Include Ostomy, Tracheostomy, and Urological Supplies in Medicare Competitive Bidding Submitted joint MDA and PPMD Comments for Consideration of Adding Duchenne Muscular Dystrophy to the Recommended Uniform Screening Panel Submitted MDA Comments on Energy and Commerce Subcommittee on Health Markup of the Newborn Screening Saves Lives Reauthorization Act (H.R.4709) Joined Coalition Comments to House Appropriations Leaders Calling for Robust Federal Funding for Medical Research in FY26 Budget Submitted MDA Comments to CMS Administrator Oz re: CY2026 Home Health Prospective Payment System Proposed Rule: Medicare Competitive Bidding of Ostomy and Urological Supplies Joined Coalition Comments to CMS Administrator Oz re: CY2026 Home Health Prospective Payment System Proposed Rule: Medicare Competitive Bidding of Ostomy and Urological Supplies Joined Coalition Comments to CMS Administrator Oz re: CY 2026 Home Health Prospective Payment System Proposed Rule: Competitive Bidding of Off-the-Shelf Orthotics, Accreditation Organizations, and Prior Authorization Joined Coalition Comments to CMS Administrator Oz re: Concerns Regarding the WISeR Model and Access to Medically Necessary Rehabilitation Care Joined Coalition Comments to CMS Administrator Oz on ITEM Coalition Support for a More Robust Pathway for Medicare Coverage of Breakthrough Technologies Submitted MDA Comments to HHS Sec. Kennedy on Personal Responsibility and Work Opportunity Reconciliation Act of 1996; Interpretation of Federal Public Benefit Joined Coalition Comments to Congressional Leadership on Reauthorizing the Enhanced Advance Premium Tax Credit Joined Coalition Comments to HHS on Ensuring Lawful Regulation and Unleashing Innovation to Make America Healthy Again Request for Information Joined Coalition Comments to Centers for Medicare and Medicaid Services (CMS) on Contract Year (CY) 2026 Medicare Prescription Payment Plan Program Joined Coalition Comments in Support of the Improving Seniors Timely Access to Care Act, S.1816/H.R. 3514

Joined Coalition Comments Urging Maintenance of the Provisions in the Final Rule, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Joined Coalition Comments to House and Senate Transportation Appropriations Leaders on FY26 Funding for U.S. Access Board

Supported a joint request for Fiscal Year 2026 Appropriations for ALS Programs Supported efforts to add FSHD to the Peer Reviewed Medical Research Program Supported robust appropriations for the NIH, CDC, FDA, and other critical agencies for our community Joined Coalition Comments to House Appropriations Leaders Calling for Robust Federal Funding for Medical Research in FY26 Budget Joined Coalition Comments to House and Senate Appropriations Leaders on FY26 Education Appropriations Joined Coalition Comments to House and Senate Labor, Health and Human Services (HHS), and Education Appropriations Leaders on Assistive Technology (AT) Act Programs Joined Coalition Comments to House and Senate Transportation Appropriations Leaders on FY26 Funding for U.S. Access Board

Expressed opposition to effort that caps indirect costs in NIH grants to 15% Supported efforts to add FSHD to the Peer Reviewed Medical Research Program Supported the reauthorization of the Rare Pediatric Disease PRV Program as part of the Gives Kids a Chance Act Continued efforts to reauthorize the ACT for ALS Submitted joint MDA and PPMD Comments for Consideration of Adding Duchenne Muscular Dystrophy to the Recommended Uniform Screening Panel Submitted MDA Comments on Energy and Commerce Subcommittee on Health Markup of the Newborn Screening Saves Lives Reauthorization Act (H.R.4709) Joined Coalition Comments to House Appropriations Leaders Calling for Robust Federal Funding for Medical Research in FY26 Budget Supported muscular dystrophy research efforts at the CDC

Opposed the One Big Beautiful Bill Act Supported the Accelerating Kids' Access to Care Act Supported the reintroduction of the MVP Act Supported the reintroduction of the Patient Access Act Supported the reintroduction of the ALS Better Care Act Supported the reintroduction of the Access to Genetic Counseling Services Act Joined Coalition Comments in Opposition to CMS/OMB Proposal to Include Ostomy, Tracheostomy, and Urological Supplies in Medicare Competitive Bidding Submitted MDA Comments to CMS Administrator Oz re: CY2026 Home Health Prospective Payment System Proposed Rule: Medicare Competitive Bidding of Ostomy and Urological Supplies Joined Coalition Comments to CMS Administrator Oz re: CY2026 Home Health Prospective Payment System Proposed Rule: Medicare Competitive Bidding of Ostomy and Urological Supplies Joined Coalition Comments to CMS Administrator Oz re: CY 2026 Home Health Prospective Payment System Proposed Rule: Competitive Bidding of Off-the-Shelf Orthotics, Accreditation Organizations, and Prior Authorization Joined Coalition Comments to CMS Administrator Oz re: Concerns Regarding the WISeR Model and Access to Medically Necessary Rehabilitation Care Joined Coalition Comments to CMS Administrator Oz on ITEM Coalition Support for a More Robust Pathway for Medicare Coverage of Breakthrough Technologies Joined Coalition Comments to Centers for Medicare and Medicaid Services (CMS) on Contract Year (CY) 2026 Medicare Prescription Payment Plan Program Joined Coalition Comments in Support of the Improving Seniors Timely Access to Care Act, S.1816/H.R. 3514 Supported the ABC Act

Supported the Accelerating Kids' Access to Care Act Opposed the One Big Beautiful Bill Act Supported the reintroduction of the Patient Access Act Joined Coalition Comments on Repealing H.R. 1 Health Provisions or Medicaid Provisions and Extending APTCs Joined Coalition Comments Urging Pharmacy Benefit Manager (PBM) Reforms Joined Coalition Comments to Congressional Leadership on Reauthorizing the Enhanced Advance Premium Tax Credit

Joined Coalition Comments Urging Maintenance of the Provisions in the Final Rule, Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Joined Coalition Comments to House and Senate Transportation Appropriations Leaders on FY26 Funding for U.S. Access Board Supported the DATA Act

Joined Coalition Comments to Secretary of Education McMahon Re: Importance of State Assessments and Strong Accountability for Students with Disabilities Joined Coalition Comments Urging to Maintain All Current Grants Under Part D of the Individuals with Disabilities Education Act (IDEA) Joined Coalition Comments to U.S. Secretary of Education McMahon re: U.S. Department of Education (ED) Proposed Priority: Advancing Artificial Intelligence in Education Joined Coalition Comments to House and Senate Appropriations Leaders on FY26 Education Appropriations Joined Coalition Comments to House and Senate Labor, Health and Human Services (HHS), and Education Appropriations Leaders on Assistive Technology (AT) Act Programs

Supported the ABC Act

Supported the Credit for Caring Act

Supported Pharmacy Benefit Manager (PBM) Reform Patient Priorities

Joined Coalition Comments re: FY26 Appropriations for Critical Housing Programs for Older Adults and People with Disabilities