Sickle Cell Disease Comprehensive Care Act
Official title: To amend title XIX of the Social Security Act to enable State Medicaid programs to provide comprehensive, coordinated care through a health home to individuals with sickle cell disease.
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Referred to the House Committee on Energy and Commerce.
Sickle Cell Disease Comprehensive Care Act
This bill allows state Medicaid programs to establish health homes to provide coordinated care for individuals with sickle-cell disease. (Under current law, state Medicaid programs may establish health homes to provide coordinated care for individuals with specified chronic conditions.) States must ensure that such care includes dental and vision services.
The Centers for Medicare & Medicaid Services must issue best practices for states on how to design and implement such health homes.
- Introduced in House Formatted Text PDF Formatted XML
- AMERICAN SOCIETY OF HEMATOLOGY
- PFIZER INC.
- TERUMO BCT, INC.
- INDIGO HILL STRATEGIES
- ARTEMIS POLICY GROUP LLC
- AMERICAN MEDICAL ASSOCIATION
Bodies those filers lobbied
- HOUSE OF REPRESENTATIVES
- SENATE
- Centers For Medicare and Medicaid Services (CMS)
- Health & Human Services, Dept of (HHS)
- Food & Drug Administration (FDA)
- Homeland Security, Dept of (DHS)
- Health Resources & Services Administration (HRSA)
- Natl Institutes of Health (NIH)
Cite this page
U.S. Congress. (2026). H.R. 5178: Sickle Cell Disease Comprehensive Care Act. 119th Congress. Open America. https://openamerica.io/bill/119-HR-5178/
"H.R. 5178: Sickle Cell Disease Comprehensive Care Act." 119th Congress, 2026, Open America, https://openamerica.io/bill/119-HR-5178/.
H.R. 5178, 119th Cong. (2026), https://openamerica.io/bill/119-HR-5178/.
[H.R. 5178: Sickle Cell Disease Comprehensive Care Act](https://openamerica.io/bill/119-HR-5178/)