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S 996 118th Congress Senate Health

Sickle Cell Disease Comprehensive Care Act

Introduced: March 28, 2023 Introduced by: Booker, Cory A. Democratic · New Jersey See on congress.gov
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This bill died when the 118th Congress ended
It never became law before the 118th Congress (2023–2024) adjourned, and bills don't carry over to the next Congress. It would have to be reintroduced. You can still save it for reference, but it won't receive updates.
 Everywhere this bill has been 2 steps
Introduced
In committee
Reported out
Passed House
Passed Senate
To President
Became law
Mar 28, 2023
Read twice and referred to the Committee on Finance.
Mar 28, 2023
Introduced in Senate
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 Plain-English summary Congressional Research Service

Sickle Cell Disease Comprehensive Care Act

This bill establishes and provides funds for a demonstration project for state Medicaid programs to improve outpatient care for individuals with sickle cell disease, with a focus on young adults and pregnant women.

The Centers for Medicare & Medicaid Services must award planning grants to at least 10 states and must select between 5 and 10 states to participate in the project. Participating states must provide specified services and support for individuals with sickle cell disease, including multidisciplinary care teams, appropriate treatments, mental health services, and specialist services.

The bill provides a 100% Federal Medical Assistance Percentage (i.e., federal matching rate) for services provided through the project.

What's happening now March 28, 2023

Read twice and referred to the Committee on Finance.

 Related & companion bills 2
  • S 904 Related bill Sickle Cell Disease Comprehensive Care Act
  • HR 1672 Related bill Sickle Cell Disease Comprehensive Care Act
 Bill text 1 version

Source documents hosted by congress.gov.

 Committees of jurisdiction 1
 Cosponsors 2
All 2 Republican 2
R
Cassidy, Bill
Louisiana · Jun 8, 2023
 R
Scott, Tim
South Carolina · Mar 28, 2023
Cite this page click to expand
APA
U.S. Congress. (2026). S. 996: Sickle Cell Disease Comprehensive Care Act. 118th Congress. Open America. https://openamerica.io/bill/118-S-996/
MLA
"S. 996: Sickle Cell Disease Comprehensive Care Act." 118th Congress, 2026, Open America, https://openamerica.io/bill/118-S-996/.
Bluebook (legal)
S. 996, 118th Cong. (2026), https://openamerica.io/bill/118-S-996/.
Markdown link
[S. 996: Sickle Cell Disease Comprehensive Care Act](https://openamerica.io/bill/118-S-996/)
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