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H.R. 5539 118th Congress House

ORPHAN Cures Act

Official title: To amend title XI of the Social Security Act to expand and clarify the exclusion for orphan drugs under the Drug Price Negotiation Program.

Introduced: September 18, 2023 Introduced by: John Joyce Republican · Pennsylvania See on congress.gov
Health Health care costs and insuranceMedicarePrescription drugs
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This bill died when the 118th Congress ended
It never became law before the 118th Congress (2023–2024) adjourned, and bills don't carry over to the next Congress. It would have to be reintroduced. You can still save it for reference, but it won't receive updates.
 Everywhere this bill has been 4 steps
Introduced
In committee
Reported out
Passed House
Passed Senate
To President
Became law
Dec 17, 2024
Referred to the Subcommittee on Health.
Sep 22, 2023
Referred to the Subcommittee on Health.
Sep 18, 2023
Referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
Sep 18, 2023
Introduced in House
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 Latest action December 17, 2024

Referred to the Subcommittee on Health.

 Related & companion bills 1
 Bill text 1 version

Source documents hosted by congress.gov.

 Committees of jurisdiction 4
 Lobbying activity 15

Registered lobbyists who named this bill in their disclosure filings. Source: federal Lobbying Disclosure Act filings.

Bodies those filers lobbied

A filing lists the bills it worked on and the parts of government it contacted in separate sections, so these are the bodies those filers named anywhere in the filing, not a per-bill breakdown.

See all 15 filings →
 Cosponsors 13
All 13 Democratic 5 Republican 6
R
Fitzpatrick, Brian K.
Pennsylvania · Dec 11, 2024
 R
Hudson, Richard
North Carolina · Dec 11, 2024
 D
Keating, William R.
Massachusetts · Dec 11, 2024
Peltola, Mary
· Dec 11, 2024
 D
Thanedar, Shri
Michigan · Jun 11, 2024
 R
Miller-Meeks, Mariannette
Iowa · Nov 28, 2023
 R
Bilirakis, Gus M.
Florida · Nov 8, 2023
 D
Gottheimer, Josh
New Jersey · Nov 8, 2023
 D
Peters, Scott H.
California · Nov 8, 2023
 R
Smucker, Lloyd
Pennsylvania · Nov 8, 2023
 D
Davis, Donald G.
North Carolina · Oct 19, 2023
 R
Hern, Kevin
Oklahoma · Oct 19, 2023
Nickel, Wiley
· Sep 18, 2023
Cite this page click to expand
APA
U.S. Congress. (2026). H.R. 5539: ORPHAN Cures Act. 118th Congress. Open America. https://openamerica.io/bill/118-HR-5539/
MLA
"H.R. 5539: ORPHAN Cures Act." 118th Congress, 2026, Open America, https://openamerica.io/bill/118-HR-5539/.
Bluebook (legal)
H.R. 5539, 118th Cong. (2026), https://openamerica.io/bill/118-HR-5539/.
Markdown link
[H.R. 5539: ORPHAN Cures Act](https://openamerica.io/bill/118-HR-5539/)
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