HR 5453
115th Congress
House
Health
Advisory bodies
Child health
Health promotion and preventive care
Hereditary and development disorders
Medical tests and diagnostic methods
Neurological disorders
Aidan's Law
Introduced: April 10, 2018
Introduced by:
Clarke, Yvette D.
Democratic
· New York
See on congress.gov
Everywhere this bill has been
2 steps
Introduced
In committee
Reported out
Passed House
Passed Senate
To President
Became law
Apr 10, 2018
Referred to the House Committee on Energy and Commerce.
Apr 10, 2018
Introduced in House
Plain-English summary
Aidan's Law
This bill authorizes newborn screenings for adrenoleukodystrophy (also known as ALD), which is a hereditary condition that damages the insulating membrane of nerve cells in the brain. The bill authorizes hospitals, child care centers, clinics, and similar institutions to test newborns for ALD in accordance with state protocols; such protocols must be approved by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children.
The bill also reauthorizes through FY2022 the heritable disorders screening program for newborns and children that is administered by the Health Resources and Services Administration.
What's happening now
Referred to the House Committee on Energy and Commerce.
Committees of jurisdiction
1