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HR 4138 112th Congress House

Neuromyelitis Optica Consortium Act

Official title: To amend the Public Health Service Act to create a National Neuromyelitis Optica Consortium to provide grants and coordinate research with respect to the cause… Show full official titleShow less

Official title: To amend the Public Health Service Act to create a National Neuromyelitis Optica Consortium to provide grants and coordinate research with respect to the causes of, and risk factors associated with, neuromyelitis optica, and for other purposes.

Introduced: March 5, 2012 See on congress.gov
Health Department of Health and Human ServicesExecutive agency funding and structureHealth programs administration and fundingMedical research
More subjectsShow fewer subjects
National Institutes of Health (NIH)Neurological disordersResearch administration and funding
This bill died when the 112th Congress ended
It never became law before the 112th Congress (2011–2012) adjourned, and bills don't carry over to the next Congress. It would have to be reintroduced. You can still save it for reference, but it won't receive updates.
 Everywhere this bill has been 3 steps
Introduced
In committee
Reported out
Passed House
Passed Senate
To President
Became law
Mar 9, 2012
Referred to the Subcommittee on Health.
Mar 5, 2012
Referred to the House Committee on Energy and Commerce.
Mar 5, 2012
Introduced in House
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 Latest action March 9, 2012

Referred to the Subcommittee on Health.

 Plain-English summary Congressional Research Service

Neuromyelitis Optica Consortium Act - Expresses the sense of Congress that there is a need to: (1) establish and coordinate a multicenter research effort to comprehensively study the causes of neuromyelitis optica (NMO) and identify potential biomarkers; and (2) encourage a collaborative effort among academic medical centers with epidemiological study groups to investigate environmental, nutritional, and genetic factors with respect to, and the pathological and epidemiological characteristics of, NMO.

Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH), in coordination with the Director of the National Institute on Minority Health and Health Disparities, to establish, administer, and coordinate a National Neuromyelitis Optica Consortium to: (1) provide five-year grants to eligible consortia to conduct research regarding the causes of, and the risk factors and biomarkers associated with, NMO; (2) assemble a panel of experts to provide guidance and recommendations for the development of a common study design, standard methods for collecting a minimum data set from study participants, specific analytical methods for examining data, provisions for consensus review of enrolled cases, and an integrated data collection network; and (3) designate a central laboratory to collect, analyze, and aggregate data with respect to funded research and to make such data and analysis available to researchers.

Requires a consortium (a partnership of two or more universities, health care organizations, or government agencies, or any combination of such entities, serving a designated catchment area), to be eligible for a grant, to demonstrate that: (1) it has the capability to enroll as research participants a minimum of 25 individuals with a diagnosis of NMO from the consortium's designated catchment area, and (2) such area does not overlap with the designated catchment area of another consortium already receiving a grant under this Act.

 Bill text 1 version

Source documents hosted by congress.gov.

 Committees of jurisdiction 2
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APA
U.S. Congress. (2026). H.R. 4138: Neuromyelitis Optica Consortium Act. 112th Congress. Open America. https://openamerica.io/bill/112-HR-4138/
MLA
"H.R. 4138: Neuromyelitis Optica Consortium Act." 112th Congress, 2026, Open America, https://openamerica.io/bill/112-HR-4138/.
Bluebook (legal)
H.R. 4138, 112th Cong. (2026), https://openamerica.io/bill/112-HR-4138/.
Markdown link
[H.R. 4138: Neuromyelitis Optica Consortium Act](https://openamerica.io/bill/112-HR-4138/)
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