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S 1158 111th Congress Senate

SMA Treatment Acceleration Act of 2009

Official title: A bill to authorize the Secretary of Health and Human Services to conduct activities to rapidly advance treatments for spinal muscular atrophy, neuromuscular d… Show full official titleShow less

Official title: A bill to authorize the Secretary of Health and Human Services to conduct activities to rapidly advance treatments for spinal muscular atrophy, neuromuscular disease, and other pediatric diseases, and for other purposes.

Introduced: September 23, 2009 See on congress.gov
Health Department of Health and Human ServicesExecutive agency funding and structureGovernment information and archivesHealth information and medical records
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Health programs administration and fundingMedical educationMedical researchMusculoskeletal and skin diseasesNational Institutes of Health (NIH)Neurological disordersResearch administration and funding
This bill died when the 111th Congress ended
It never became law before the 111th Congress (2009–2010) adjourned, and bills don't carry over to the next Congress. It would have to be reintroduced. You can still save it for reference, but it won't receive updates.
 Everywhere this bill has been 2 steps
Introduced
In committee
Reported out
Passed House
Passed Senate
To President
Became law
May 21, 2009
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
May 21, 2009
Introduced in Senate
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 Latest action May 21, 2009

Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

 Plain-English summary Congressional Research Service

SMA Treatment Acceleration Act of 2009 - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH) to establish a national clinical trials network for spinal muscular atrophy by upgrading and unifying spinal muscular atrophy clinical trial sites and recruiting new investigators and sites. Requires the Director to ensure that such network: (1) conducts coordinated, multisite, clinical trials of therapies and clinical approaches to the treatment of spinal muscular atrophy; and (2) rapidly and efficiently disseminates scientific findings to the field.

Requires the Director to: (1) establish a data coordinating center with respect to spinal muscular atrophy; and (2) expand and intensify NIH programs with respect to preclinical translation research related to spinal muscular atrophy.

Requires the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to enhance and support a spinal muscular atrophy patient registry to provide for expanded epidemiological research towards improving awareness, management, treatment, and prevention of spinal muscular atrophy. Requires the Secretary to ensure the collection and analysis of longitudinal data related to individuals of all ages.

Directs the Secretary to establish the Interagency Spinal Muscular Atrophy Research Coordinating Committee. Sets forth the duties of the Committee, including to develop a comprehensive strategy related to spinal muscular atrophy research and other related neurological diseases and disorders.

Requires the Secretary to establish a program to provide information and education on spinal muscular atrophy to health professionals and the general public.

 Related & companion bills 1
 Bill text 1 version

Source documents hosted by congress.gov.

 Committees of jurisdiction 1
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APA
U.S. Congress. (2026). S. 1158: SMA Treatment Acceleration Act of 2009. 111th Congress. Open America. https://openamerica.io/bill/111-S-1158/
MLA
"S. 1158: SMA Treatment Acceleration Act of 2009." 111th Congress, 2026, Open America, https://openamerica.io/bill/111-S-1158/.
Bluebook (legal)
S. 1158, 111th Cong. (2026), https://openamerica.io/bill/111-S-1158/.
Markdown link
[S. 1158: SMA Treatment Acceleration Act of 2009](https://openamerica.io/bill/111-S-1158/)
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