S 805 107th Congress Senate

MD-CARE Act

Official title: A bill to amend the Public Health Service Act to provide for research with respect to various forms of muscular dystrophy, including Duchenne, Becker, limb gir… Show full official titleShow less

Official title: A bill to amend the Public Health Service Act to provide for research with respect to various forms of muscular dystrophy, including Duchenne, Becker, limb girdle, congenital, facioscapulohumeral, myotonic, oculopharyngeal, distal, and emery-dreifuss muscular dystrophies.

Introduced: May 1, 2001 See on congress.gov

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Department of Health and Human ServicesDisabledEconomics and Public FinanceEducationEpidemiologyExecutive reorganizationFederal aid to medical educationFederal aid to medical researchGovernment Operations and PoliticsGovernment publicityHealth educationHealth planningHealth surveysHereditary diseasesHigher education

Everywhere this bill has been 3 steps

Introduced

In committee

Reported out

Passed House

Passed Senate

To President

Became law

May 1, 2001

Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

May 1, 2001

Sponsor introductory remarks on measure. (CR S4115-4116)

May 1, 2001

Introduced in Senate

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Latest action May 1, 2001

Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

Plain-English summary Congressional Research Service

Muscular Dystrophy Community Assistance, Research and Education Amendments of 2001, or the MD-CARE Act - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH), in coordination with specified national research institutes, to: (1) expand research and related programs concerning various forms of muscular dystrophy, including Duchenne, myotonic, and facioscapulohumeral muscular dystrophy.

Requires the Director to: (1) award grants and contracts for establishing at least five related centers of excellence; and (2) provide for a related tissue donation program.

Requires the Secretary of Health and Human Services to establish the Muscular Dystrophy Coordinating Committee to coordinate NIH programs and other Federal programs.

Authorizes the Secretary, through the Centers for Disease Control and Prevention, to: (1) award grants and cooperative agreements for muscular dystrophy data collection and analysis; and (2) conduct a National Muscular Dystrophy Surveillance Program. Requires the Secretary, through the Centers, to establish at least three centers of excellence in muscular dystrophy epidemiology.

Requires the Secretary to establish a program to provide professionals and the public with muscular dystrophy information.

Related & companion bills 1

Bill text 1 version