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HR 2009 105th Congress House

Amyotrophic Lateral Sclerosis (ALS) Research, Treatment, and Assistance Act of 1997

Official title: To amend the Social Security Act to waive the 24 month waiting period for Medicare coverage of individuals disabled with amyotrophic lateral sclerosis (ALS), t… Show full official titleShow less

Official title: To amend the Social Security Act to waive the 24 month waiting period for Medicare coverage of individuals disabled with amyotrophic lateral sclerosis (ALS), to provide Medicare coverage of drugs used for treatment of ALS, and to amend the Public Health Service Act to increase Federal funding for research on ALS.

Introduced: July 31, 1997 See on congress.gov
Health Department of Health and Human ServicesDisabledDrug therapyEconomics and Public Finance
More subjectsShow fewer subjects
Federal aid to medical researchGovernment Operations and PoliticsMedicareMuscular diseasesNervous system diseasesOld age, survivors and disability insuranceResearch centersScience, Technology, CommunicationsSocial WelfareSocial security eligibility
This bill died when the 105th Congress ended
It never became law before the 105th Congress (1997–1998) adjourned, and bills don't carry over to the next Congress. It would have to be reintroduced. You can still save it for reference, but it won't receive updates.
 Everywhere this bill has been 7 steps
Introduced
In committee
Reported out
Passed House
Passed Senate
To President
Became law
Jun 26, 1997
Referred to the Subcommittee on Health and Environment, for a period to be subsequently determined by the Chairman.
Jun 25, 1997
Referred to the Subcommittee on Health.
Jun 23, 1997
Sponsor introductory remarks on measure. (CR E1298)
Jun 23, 1997
Referred to House Ways and Means
Jun 23, 1997
Referred to House Commerce
Jun 23, 1997
Referred to the Committee on Ways and Means, and in addition to the Committee on Commerce, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
Jun 23, 1997
Introduced in House
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 Latest action June 26, 1997

Referred to the Subcommittee on Health and Environment, for a period to be subsequently determined by the Chairman.

 Plain-English summary Congressional Research Service

Amyotrophic Lateral Sclerosis (ALS) Research, Treatment, and Assistance Act of 1997 - Amends title II (Old Age, Survivors and Disability Insurance) of the Social Security Act (SSA) to provide for a waiver of the 24-month waiting period for Medicare coverage for individuals disabled by amyotrophic lateral sclerosis, also known as ALS or Lou Gehrig's Disease.

Amends SSA title XVIII (Medicare) to provide for Medicare coverage of any drug approved by the Food and Drug Administration for use in the treatment or alleviation of ALS-related symptoms.

Authorizes appropriations, in addition to any already available, for ALS research through the National Institutes of Health.

 Bill text 1 version

Source documents hosted by congress.gov.

 Committees of jurisdiction 4
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APA
U.S. Congress. (2026). H.R. 2009: Amyotrophic Lateral Sclerosis (ALS) Research, Treatment, and Assistance Act of 1997. 105th Congress. Open America. https://openamerica.io/bill/105-HR-2009/
MLA
"H.R. 2009: Amyotrophic Lateral Sclerosis (ALS) Research, Treatment, and Assistance Act of 1997." 105th Congress, 2026, Open America, https://openamerica.io/bill/105-HR-2009/.
Bluebook (legal)
H.R. 2009, 105th Cong. (2026), https://openamerica.io/bill/105-HR-2009/.
Markdown link
[H.R. 2009: Amyotrophic Lateral Sclerosis (ALS) Research, Treatment, and Assistance Act of 1997](https://openamerica.io/bill/105-HR-2009/)
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