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HR 5173 103th Congress House Health Data banks Department of Health and Human Services Diseases Epidemiology Executive reorganization Federal advisory bodies Government Operations and Politics Health education Health planning Medical research Science, Technology, Communications Strategic planning

Office for Rare Disease Research Act of 1994

Introduced: October 4, 1994 Introduced by: Wyden, Ron Democratic · Oregon See on congress.gov
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This bill died when the 103rd Congress ended
It never became law before the 103rd Congress (1993–1994) adjourned, and bills don't carry over to the next Congress. It would have to be reintroduced. You can still save it for reference, but it won't receive updates.
 Everywhere this bill has been 4 steps
Introduced
In committee
Reported out
Passed House
Passed Senate
To President
Became law
Oct 17, 1994
Referred to the Subcommittee on Health and the Environment.
Oct 4, 1994
Referred to the House Committee on Energy and Commerce.
Oct 4, 1994
Sponsor introductory remarks on measure. (CR E2055)
Oct 4, 1994
Introduced in House
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 Plain-English summary Congressional Research Service

Office for Rare Disease Research Act of 1994 - Amends the Public Health Service Act to establish within the Office of the Director of the National Institutes of Health an Office for Rare Disease Research in order to promote and coordinate the conduct of research on rare diseases through a strategic research plan and to establish and manage a rare disease research clinical database.

Directs the Secretary to establish an advisory council to provide advice to the Director of the Office.

What's happening now October 17, 1994

Referred to the Subcommittee on Health and the Environment.

 Related & companion bills 2
  • HR 3577 Text similarities Center for Rare Disease Research Act of 1993
  • S 1203 Text similarities Office for Rare Disease Research Act of 1994
 Bill text 1 version

Source documents hosted by congress.gov.

 Committees of jurisdiction 2
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APA
U.S. Congress. (2026). H.R. 5173: Office for Rare Disease Research Act of 1994. 103rd Congress. Open America. https://openamerica.io/bill/103-HR-5173/
MLA
"H.R. 5173: Office for Rare Disease Research Act of 1994." 103rd Congress, 2026, Open America, https://openamerica.io/bill/103-HR-5173/.
Bluebook (legal)
H.R. 5173, 103rd Cong. (2026), https://openamerica.io/bill/103-HR-5173/.
Markdown link
[H.R. 5173: Office for Rare Disease Research Act of 1994](https://openamerica.io/bill/103-HR-5173/)
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