THE MICHAEL J. FOX FOUNDATION FOR PARKINSON'S RESEARCH
Lobbying for THE MICHAEL J. FOX FOUNDATION FOR PARKINSON'S RESEARCH
General Parkinson's disease Information, including information on symptoms, health coverage, health costs, social determinants of health, data collection, research, environmental risks, and health access for underserved communities Implementation of the Dr. Emmanuel Bilirakis and Honorable Jennifer Wexton National Plan to End Parkinsons Act (Public Law No: 118-66) - requires the U.S. Department of Health and Human services to produce an integrated national plan to prevent, diagnose, treat, and cure Parkinsons, ameliorate symptoms, and slow or stop progression. This plan will encompass Parkinsons disease and all other neurodegenerative Parkinsonisms, such as multiple system atrophy, corticobasal degeneration, progressive supranuclear palsy, and Parkinsons-related dementia. The Harmonizing Environmental Analyses and Launching Therapeutic Hubs to Yield Bolstered Research And Innovation in Neurological Science (HEALTHY BRAINS) Act (to be reintroduced): creates a Centers of Excellence grant program within the National Institutes of Health to conduct and support of research, training, and health information dissemination with respect to environmental risk factors of neurodegenerative diseases, including Parkinsons disease. Prioritizing neurodegenerative disease research within the National Institutes of Health Older Americans Act (OAA): Advocacy related to the reauthorization, funding, and implementation of the Older Americans Act, including programs that support nutrition services, caregiver supports, disease prevention and health promotion, community-based services, and coordinated systems of care that enable older adults, including those living with Parkinsons disease and other chronic conditions. Wasteful and Inappropriate Service Reduction (WISeR) Model: Advocacy related to the Wasteful and Inappropriate Service Reduction (WISeR) Model, a Medicare Innovation Center demonstration project that tests a new prior authorization and review framework for select services in Original Medicare.
Lobbying to increase the affordability and accessibility of treatments for Parkinsons disease. S.1227/H.R.2491- Alleviating Barriers for Caregivers (ABC) Act: requires the Centers for Medicare & Medicaid Services (CMS) and Social Security to simplify processes and communications for family caregivers to assist individuals in accessing and utilizing benefits. Wasteful and Inappropriate Service Reduction (WISeR) Model: Advocacy related to the WISeR Model, a Center for Medicare and Medicaid Innovation demonstration project that tests a new prior authorization and review framework for select services in Original Medicare.
Funding for implementation of Dr. Emmanuel Bilirakis and Honorable Jennifer Wexton National Plan to End Parkinsons Act (Public Law No: 118-66). S.2587/H.R.5304 - Funding for discretionary, non-defense priorities including overall investment in the National Institute of Health, ARPA-H, and Centers for Disease Control and Prevention within the FY 2026 Labor, Health and Human Services, Education, and Related Agencies Appropriation bills. Funding for the National Neurological Conditions Surveillance System under the Centers for Disease Control and Prevention within the FY 2026 Labor, Health and Human Services, Education, and Related Agencies Appropriation bills. S.2572/H.R.4016 - Funding for the Parkinson's Research Program (PRP) under the Department of Defense's Congressionally Directed Medical Research Programs (CDMRP) within the FY 2026 Defense Appropriation bills. H.R.3944 - Funding for the Parkinson's Disease Research, Education and Clinical Centers under the Department of Veterans Affairs within the FY 2026 Military Construction, Veterans Affairs and Related Agencies Appropriation bills. Federal Funding for Parkinson's Disease research in upcoming Fiscal Year 2027 appropriations bills, including support for the National Institute of Neurological Disorders and Stroke's Morris K. Udall Centers of Excellence Program.
Increasing the affordability and accessibility of treatments for Parkinsons disease.
General education on the importance of the Department of Defense and Department of Veterans Affairs medical research and care programs for military service personnel and Veterans living with Parkinson's disease. Boxing Therapy for Parkinsons Access Act: (to be reintroduced) - Requires the Department of Veterans Affairs (VA) to furnish boxing-based exercise classes to veterans who (1) are enrolled in the VA health care system, (2) have been diagnosed with Parkinson's disease (or a similar movement disorder), and (3) elect to participate in such classes to treat the disease or disorder.
Lobbying to ban the use of or reduce exposures to environmental health threats linked to Parkinsons disease, including Trichloroethylene (TCE) and paraquat, in the United States. S.J.Res.19/H.J.Res.27/ H.J.Res.34 - A joint resolution providing for congressional disapproval under chapter 8 of title 5, United States Code, of the rule submitted by the Environmental Protection Agency relating to """Trichloroethylene (TCE); Regulation Under the Toxic Substances Control Act (TSCA)""" The Harmonizing Environmental Analyses and Launching Therapeutic Hubs to Yield Bolstered Research And Innovation in Neurological Science (HEALTHY BRAINS) Act (to be reintroduced): creates a Centers of Excellence grant program within the National Institutes of Health to conduct and support of research, training, and health information dissemination with respect to environmental risk factors of neurodegenerative diseases, including Parkinsons disease.
S.925/H.R.2036 - Credit for Caring Act of 2025: seeks to amend the Internal Revenue Code of 1986 to provide a nonrefundable credit for working family caregivers.