-Labor, Health and Human Services, Education and Related Agencies Appropriations Act, 2026, support funding for epilepsy programs and research including $11.581 billion for the CDC including $11.5 million for the CDCs Epilepsy program and $164 million for the CDCs Safe Motherhood and Infant Health Program, at least $48.7 billion for the NIH, $680 million for the BRAIN Initiative, and increased funding for the Social Security Administration. -Military Construction, Veterans Affairs, and Related Agencies Appropriations Act, 2026, support at least $29.212 million for the VA Epilepsy Centers of Excellence. -Agriculture, Rural Development, Food and Drug Administration and Related Agencies Appropriations Act, 2026, support robust funding for the Food & Drug Administration; oppose provisions that could restrict access to CBD and block rescheduling of cannabis -Defense Appropriations Act, 2026, within the Congressionally Directed Medical Research Programs, support $12 million for the Epilepsy Program, $10 million for the Tuberous Sclerosis Complex program and $175 million for the TBI and Psychological Health Program. -Commerce, Justice, Science Appropriations Act, 2026, oppose provisions that could restrict access to CBD and block rescheduling
-H.R. 1, Oppose cuts and changes to Medicaid and support policies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passage -S. 864/H.R. 6423, HELP Copays Act, support passage -S. 932/ H.R. 1262, Give Kids A Chance Act, support reauthorization of the Rare Pediatric Disease Review Voucher -Express concern with the WISeR Model and how it could impede access to some epilepsy treatments -PBM Reform, support patient-centric policies including inclusion of the Safe Step Act and HELP Copays Act -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy. Express concerns with the impact of the GUARD Model on the Six Protected Classes policy. -Support reauthorization of the enhanced Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -ACA marketplace rule, express concerns that changes will decrease enrollment and increase costs -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -S. 752/H.R. 1509, Accelerating Kids Access to Care Act, support passage -Support protecting the current structure of the U.S. Department of Health and Human Services (HHS) -Support the facilities and administrative cost structure for the NIH -Express support for the current grantmaking process of the NIH, including opposing an expansion of multiyear funding -Express concerns with HHS staffing changes and cuts -Support programs that assist caregivers -Oppose legislative or regulatory policies that rely on metrics like Quality-Adjusted Life Years -Support rescheduling and safe and legal access to cannabis -S. 1816/ H.R. 3514, Improving Seniors Timely Access to Care Act, support passage -S. 455/H.R. 1061, Protecting Sensitive Locations Act, support passage -Oppose legislation that would weaken the Affordable Care Act protections, including H.R. 2528, Association Health Plans Act and H.R. 2571, Self-Insurance Protection Act -Express concerns with legislative and regulatory policies that would restrict the use of animals in research -Support legislation and policy preserving charitable giving including the Combined Federal Campaign -H.R. 6280, Access to Genetic Counselor Services Act, support passage -Oppose the Consumer Financial Protection Bureau rule stating that the Fair Credit Reporting Act (FCRA) preempts state laws on credit reporting -Express concerns with the proposed public charge regulation and its impacts on coverage and access to care for people with chronic conditions and disabilities, including immigrants and their lawful permanent resident or U.S. citizen family members -Support legislation and regulations that protect Medicaid Home- and Community-Based Services (HCBS) and increase access to these services
-Support implementation of disability provisions in FAA reauthorization -Oppose the order to end funding for youth LGBTQ+ services on the 988 hotline -Oppose final rules on non-discrimination in public programs -Support inclusion of disability/accessibility provisions in Surface Transportation Reauthorization -Support the inclusion of disability and accessibility provisions as part of any autonomous vehicle legislation
-Oppose changes to and Reductions of Force at the Department of Education that could impede the rights of students with disabilities -S. 3448/H.R. 6617, Keeping All Students Safe Act, support passage