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S 1382 110th Congress Senate Health Civil Rights and Liberties, Minority Issues Congress Congressional reporting requirements Data banks Economics and Public Finance Epidemiology Federal advisory bodies Federal aid to health facilities Government Operations and Politics Health information systems Health surveys Medical records Medical statistics Nervous system diseases Right of privacy Science, Technology, Communications

ALS Registry Act

Introduced: May 14, 2007 See on congress.gov
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 Everywhere this bill has been 24 steps
Introduced
In committee
Reported out
Passed House
Passed Senate
To President
Became law
Oct 8, 2008
Became Public Law No: 110-373.
Oct 8, 2008
Signed by President.
Sep 29, 2008
Presented to President.
Sep 26, 2008
Cleared for White House.
Sep 26, 2008
Motion to reconsider laid on the table Agreed to without objection.
Sep 26, 2008
On motion to suspend the rules and pass the bill Agreed to by recorded vote (2/3 required): 415 - 2 (Roll no. 650). (text: CR 9/25/2008 H9916)
Sep 26, 2008
Passed/agreed to in House: On motion to suspend the rules and pass the bill Agreed to by recorded vote (2/3 required): 415 - 2 (Roll no. 650).(text: CR 9/25/2008 H9916)
Sep 26, 2008
Considered as unfinished business. (consideration: CR H10042-10043)
Sep 25, 2008
At the conclusion of debate, the chair put the question on the motion to suspend the rules. Mr. Terry objected to the vote on the grounds that a quorum was not present. Further proceedings on the motion were postponed. The point of no quorum was withdrawn.
Sep 25, 2008
DEBATE - The House proceeded with forty minutes of debate on S. 1382.
Sep 25, 2008
Considered under suspension of the rules. (consideration: CR H9916-9917)
Sep 25, 2008
Mr. Pallone moved to suspend the rules and pass the bill.
Sep 24, 2008
Held at the desk.
Sep 24, 2008
Message on Senate action sent to the House.
Sep 24, 2008
Received in the House.
Sep 23, 2008
Passed Senate with an amendment by Unanimous Consent. (text: CR S9230-9231)
Sep 23, 2008
Passed/agreed to in Senate: Passed Senate with an amendment by Unanimous Consent.(text: CR S9230-9231)
Sep 23, 2008
Measure laid before Senate by unanimous consent. (consideration: CR S9230-9232)
Dec 4, 2007
Placed on Senate Legislative Calendar under General Orders. Calendar No. 518.
Dec 4, 2007
Committee on Health, Education, Labor, and Pensions. Reported by Senator Kennedy with an amendment in the nature of a substitute. Without written report.
Nov 14, 2007
Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably.
May 14, 2007
Read twice and referred to the Committee on Health, Education, Labor, and Pensions. (text of measure as introduced: CR S6062-6063)
May 14, 2007
Sponsor introductory remarks on measure. (CR S6062)
May 14, 2007
Introduced in Senate
 Votes taken on this bill 1
DateChamberWhat was voted onResultYes–No
Sep 26, 2008 House · vote #650 On Motion to Suspend the Rules and Pass Passed 415–2 See who voted →
 Plain-English summary Congressional Research Service

ALS Registry Act - (Sec. 2) Amends the Public Health Service Act to authorize the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), if scientifically advisable, to: (1) develop a system to collect data on amyotrophic lateral sclerosis (ALS) and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, or progress to ALS; and (2) establish a national registry for the collection and storage of such data to develop a population-based registry of cases.

Authorizes the Secretary, acting through the Director, to establish the Advisory Committee on the National ALS Registry, which may review information and make recommendations to the Secretary concerning: (1) the development and maintenance of the registry; (2) the type of information to be included; (3) the manner in which data is to be collected; (4) the use and availability of such data; and (5) the collection of information about diseases and disorders that primarily affect motor neurons that are considered essential to furthering the study and cure of ALS.

Allows the Secretary, acting through the Director, to award grants to, and enter into contracts and cooperative agreements with, public or private nonprofit entities for the collection, analysis, and reporting of data on ALS and other motor neuron disorders.

Authorizes the Secretary, acting through the Director, to: (1) identify, build upon, expand, and coordinate among existing data and surveillance systems, surveys, registries, and other federal public health and environmental infrastructure wherever possible; and (2) provide for research access to ALS data as recommended by the Advisory Committee in a manner that protects personal privacy.

Allows the Secretary to ensure that epidemiological and other types of information is made available to the National Institutes of Health (NIH) and the Department of Veterans Affairs (VA).

(Sec. 3) Authorizes the Secretary to report to the appropriate congressional committees on ALS registries, including: (1) the registries currently under way and future planned registries; (2) the criteria involved in determining what registries to conduct, defer, or suspend; (3) the scope of those registries; and (4) the activities the Secretary undertakes to establish partnerships with research and patient advocacy communities to expand registries.

What's happening now October 8, 2008

Became Public Law No: 110-373.

 Committees of jurisdiction 1
 Cosponsors 17
All 17 Democratic 8 Republican 8 Independent 1