S 1382 110th Congress Senate Health Civil Rights and Liberties, Minority Issues Congress Congressional reporting requirements Data banks Economics and Public Finance Epidemiology Federal advisory bodies Federal aid to health facilities Government Operations and Politics Health information systems Health surveys Medical records Medical statistics Nervous system diseases Right of privacy Science, Technology, Communications

ALS Registry Act

Introduced: May 14, 2007 See on congress.gov

Everywhere this bill has been 23 steps

Introduced

In committee

Reported out

Passed House

Passed Senate

To President

Became law

Oct 8, 2008

Became Public Law No: 110-373.

Oct 8, 2008

Signed by President.

Sep 29, 2008

Presented to President.

Sep 26, 2008

Cleared for White House.

Sep 26, 2008

Motion to reconsider laid on the table Agreed to without objection.

Sep 26, 2008

On motion to suspend the rules and pass the bill Agreed to by recorded vote (2/3 required): 415 - 2 (Roll no. 650). (text: CR 9/25/2008 H9916)

Sep 26, 2008

Considered as unfinished business. (consideration: CR H10042-10043)

Sep 25, 2008

At the conclusion of debate, the chair put the question on the motion to suspend the rules. Mr. Terry objected to the vote on the grounds that a quorum was not present. Further proceedings on the motion were postponed. The point of no quorum was withdrawn.

Sep 25, 2008

DEBATE - The House proceeded with forty minutes of debate on S. 1382.

Sep 25, 2008

Considered under suspension of the rules. (consideration: CR H9916-9917)

Sep 25, 2008

Mr. Pallone moved to suspend the rules and pass the bill.

Sep 24, 2008

Held at the desk.

Sep 24, 2008

Message on Senate action sent to the House.

Sep 24, 2008

Received in the House.

Sep 23, 2008

Passed Senate with an amendment by Unanimous Consent. (text: CR S9230-9231)

Sep 23, 2008

Passed/agreed to in Senate: Passed Senate with an amendment by Unanimous Consent.(text: CR S9230-9231)

Sep 23, 2008

Measure laid before Senate by unanimous consent. (consideration: CR S9230-9232)

Dec 4, 2007

Placed on Senate Legislative Calendar under General Orders. Calendar No. 518.

Dec 4, 2007

Committee on Health, Education, Labor, and Pensions. Reported by Senator Kennedy with an amendment in the nature of a substitute. Without written report.

Nov 14, 2007

Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably.

May 14, 2007

Read twice and referred to the Committee on Health, Education, Labor, and Pensions. (text of measure as introduced: CR S6062-6063)

May 14, 2007

Sponsor introductory remarks on measure. (CR S6062)

May 14, 2007

Introduced in Senate

Votes taken on this bill 1

Date	Chamber	What was voted on	Result	Yes–No
Sep 26, 2008	House · vote #650	On Motion to Suspend the Rules and Pass	Passed	415–2	See who voted →

Amendments to this bill 1

Amendments propose changes to this bill. Members vote on amendments separately before the final bill vote. An agreed amendment becomes part of the bill; a failed amendment does not.

1 agreed to

Amendment	Sponsor	Purpose	Status	Latest action
SAMDT 5,637	—	In the nature of a substitute.	Agreed to	Sep 23, 2008

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Plain-English summary Congressional Research Service

ALS Registry Act - (Sec. 2) Amends the Public Health Service Act to authorize the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), if scientifically advisable, to: (1) develop a system to collect data on amyotrophic lateral sclerosis (ALS) and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, or progress to ALS; and (2) establish a national registry for the collection and storage of such data to develop a population-based registry of cases.

Authorizes the Secretary, acting through the Director, to establish the Advisory Committee on the National ALS Registry, which may review information and make recommendations to the Secretary concerning: (1) the development and maintenance of the registry; (2) the type of information to be included; (3) the manner in which data is to be collected; (4) the use and availability of such data; and (5) the collection of information about diseases and disorders that primarily affect motor neurons that are considered essential to furthering the study and cure of ALS.

Allows the Secretary, acting through the Director, to award grants to, and enter into contracts and cooperative agreements with, public or private nonprofit entities for the collection, analysis, and reporting of data on ALS and other motor neuron disorders.

Authorizes the Secretary, acting through the Director, to: (1) identify, build upon, expand, and coordinate among existing data and surveillance systems, surveys, registries, and other federal public health and environmental infrastructure wherever possible; and (2) provide for research access to ALS data as recommended by the Advisory Committee in a manner that protects personal privacy.

Allows the Secretary to ensure that epidemiological and other types of information is made available to the National Institutes of Health (NIH) and the Department of Veterans Affairs (VA).

(Sec. 3) Authorizes the Secretary to report to the appropriate congressional committees on ALS registries, including: (1) the registries currently under way and future planned registries; (2) the criteria involved in determining what registries to conduct, defer, or suspend; (3) the scope of those registries; and (4) the activities the Secretary undertakes to establish partnerships with research and patient advocacy communities to expand registries.

What's happening now October 8, 2008

Became Public Law No: 110-373.

Related & companion bills 1

Bill text 5 versions