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HR 2295 110th Congress House Health Data banks Economics and Public Finance Epidemiology Federal advisory bodies Federal aid to health facilities Government Operations and Politics Health information systems Health surveys Medical statistics Nervous system diseases Science, Technology, Communications

ALS Registry Act

Introduced: May 14, 2007 See on congress.gov
 Everywhere this bill has been 21 steps
Introduced
In committee
Reported out
Passed House
Passed Senate
To President
Became law
Oct 31, 2007
Read the second time. Placed on Senate Legislative Calendar under General Orders. Calendar No. 457.
Oct 30, 2007
Read the first time. Placed on Senate Legislative Calendar under Read the First Time.
Oct 17, 2007
Received in the Senate.
Oct 16, 2007
Motion to reconsider laid on the table Agreed to without objection.
Oct 16, 2007
On motion to suspend the rules and pass the bill, as amended Agreed to by the Yeas and Nays: (2/3 required): 411 - 3 (Roll no. 970). (text: CR 10/15/2007 H11513-11514)
Oct 16, 2007
Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by the Yeas and Nays: (2/3 required): 411 - 3 (Roll no. 970).(text: CR 10/15/2007 H11513-11514)
Oct 16, 2007
Considered as unfinished business. (consideration: CR H11586)
Oct 15, 2007
At the conclusion of debate, the Yeas and Nays were demanded and ordered. Pursuant to the provisions of clause 8, rule XX, the Chair announced that further proceedings on the motion would be postponed.
Oct 15, 2007
DEBATE - The House proceeded with forty minutes of debate on H.R. 2295.
Oct 15, 2007
Considered under suspension of the rules. (consideration: CR H11513-11516)
Oct 15, 2007
Ms. Baldwin moved to suspend the rules and pass the bill, as amended.
Oct 15, 2007
Placed on the Union Calendar, Calendar No. 236.
Oct 15, 2007
Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 110-379.
Sep 27, 2007
Ordered to be Reported (Amended) by Voice Vote.
Sep 27, 2007
Committee Consideration and Mark-up Session Held.
Jul 19, 2007
Forwarded by Subcommittee to Full Committee (Amended) by Voice Vote .
Jul 19, 2007
Subcommittee Consideration and Mark-up Session Held.
May 14, 2007
Referred to the Subcommittee on Health.
May 14, 2007
Referred to the House Committee on Energy and Commerce.
May 14, 2007
Sponsor introductory remarks on measure. (CR E1042)
May 14, 2007
Introduced in House
 Votes taken on this bill 1
DateChamberWhat was voted onResultYes–No
Oct 16, 2007 House · vote #970 On Motion to Suspend the Rules and Pass, as Amended Passed 4113 See who voted →
 Plain-English summary Congressional Research Service

ALS Registry Act - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) develop a system to collect data on amyotrophic lateral sclerosis (ALS) and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, or progress to ALS; and (2) establish a national registry for the collection and storage of such data.

Requires the Secretary, acting through the Director, to establish the Advisory Committee on the National ALS Registry to review information and make recommendations to the Secretary concerning: (1) the development and maintenance of the registry; (2) the type of information to be included; (3) the manner in which data is to be collected; (4) the use and availability of such data; and (5) the collection of information about diseases and disorders that primarily affect motor neurons that are considered essential to furthering the study and cure of ALS. Sets forth reporting requirements.

Allows the Secretary, acting through the Director, to award grants to, and enter into contracts and cooperative agreements with, public or private nonprofit entities for the collection, analysis, and reporting of data on ALS and other motor neuron disorders.

Requires the Secretary, acting through the Director, to: (1) identify, build upon, expand, and coordinate among existing data and surveillance systems, surveys, registries, and other federal public health and environmental infrastructure wherever possible; and (2) provide for research access to ALS data as recommended by the Advisory Committee in a manner that protects personal privacy.

Requires the Secretary to ensure that epidemiological and other types of information is made available to the National Institutes of Health (NIH) and the Department of Veterans Affairs.

Authorizes appropriations for FY2008-FY2012.

What's happening now October 31, 2007

Read the second time. Placed on Senate Legislative Calendar under General Orders. Calendar No. 457.

 Committees of jurisdiction 2
 Cosponsors 50
D
Larson, John B.
Connecticut · Oct 15, 2007
D
Lynch, Stephen F.
Massachusetts · Sep 4, 2007
R
Moran, Jerry
Kansas · Jul 31, 2007
R
Rogers, Mike D.
Alabama · Jul 12, 2007
D
Cleaver, Emanuel
Missouri · Jul 11, 2007
R
Carter, John R.
Texas · Jun 25, 2007
D
DeGette, Diana
Colorado · Jun 21, 2007
D
Davis, Danny K.
Illinois · Jun 15, 2007
D
Doggett, Lloyd
Texas · Jun 13, 2007
D
Thompson, Bennie G.
Mississippi · Jun 11, 2007
D
Thompson, Mike
California · Jun 11, 2007
R
Blackburn, Marsha
Tennessee · Jun 6, 2007
R
Buchanan, Vern
Florida · Jun 6, 2007
R
Lucas, Frank D.
Oklahoma · Jun 6, 2007
R
Rogers, Harold
Kentucky · Jun 6, 2007
D
Velázquez, Nydia M.
New York · Jun 6, 2007
R
Capito, Shelley Moore
West Virginia · May 24, 2007
D
Gillibrand, Kirsten E.
New York · May 24, 2007
R
Wicker, Roger F.
Mississippi · May 24, 2007
D
Castor, Kathy
Florida · May 23, 2007
D
Larsen, Rick
Washington · May 23, 2007
R
McCaul, Michael T.
Texas · May 23, 2007
R
Graves, Sam
Missouri · May 22, 2007
D
Green, Al
Texas · May 22, 2007
D
Matsui, Doris O.
California · May 22, 2007
D
Murphy, Christopher
Connecticut · May 22, 2007
D
Welch, Peter
Vermont · May 22, 2007
R
Wilson, Joe
South Carolina · May 22, 2007
R
Calvert, Ken
California · May 17, 2007
D
Sánchez, Linda T.
California · May 17, 2007
R
Simpson, Michael K.
Idaho · May 17, 2007
D
Smith, Adam
Washington · May 17, 2007
D
Neal, Richard E.
Massachusetts · May 16, 2007
D
Schiff, Adam B.
California · May 16, 2007
R
Sessions, Pete
Texas · May 16, 2007
D
Wasserman Schultz, Debbie
Florida · May 16, 2007
R
Boozman, John
Arkansas · May 15, 2007
D
Baldwin, Tammy
Wisconsin · May 14, 2007
D
Cohen, Steve
Tennessee · May 14, 2007
D
Hirono, Mazie K.
Hawaii · May 14, 2007
D
Kaptur, Marcy
Ohio · May 14, 2007
D
Markey, Edward J.
Massachusetts · May 14, 2007
D
McCollum, Betty
Minnesota · May 14, 2007
D
McGovern, James P.
Massachusetts · May 14, 2007
D
Nadler, Jerrold
New York · May 14, 2007
D
Norton, Eleanor Holmes
District of Columbia · May 14, 2007
D
Schakowsky, Janice D.
Illinois · May 14, 2007
D
Sherman, Brad
California · May 14, 2007
R
Smith, Christopher H.
New Jersey · May 14, 2007
D
Van Hollen, Chris
Maryland · May 14, 2007