-Honor Our Living Donors Act (H.R. 628 / S. 957) Legislation to simplify the process of determining eligibility for reimbursement for living kidney donation-related costs -Expanding Support for Living Donors Act (draft bill) Draft legislation to expand eligibility for living kidney donors to receive reimbursement for living kidney donation-related costs -CONNECT for Health Act (S. 1261) Legislation to expand the use of telehealth and remote patient monitoring services in Medicare on a permanent basis -Organ Donation Referral Improvement Act (H.R. 330) Calls for study on adoption and best practices in automated referral regarding potential organ donors from donor hospitals to local organ procurement organizations -Removing Barriers for Organ Donation Act (bill number forthcoming) Mandates implementation of automated referral regarding potential organ donors from donor hospitals to local organ procurement organizations, with exceptions, and calls for a GAO study and agency coordination -Living Donor Protection Act (H.R. 4583) and related FMLA bill (H.R. 4582) Clarifies and strengthens protections for Americans who donate an organ -One Big, Beautiful Bill (H.R. 1) ASN raised concerns about access to care for people with kidney diseases, including kidney failure and transplants, as well as the effect of limits on federal loan programs for the future nephrology workforce -Medicare Patient Access and Practice Stabilization Act of 2025 (H.R. 879) Legislation to reverse a recent cut to physicians and other health professionals in the Medicare program and to provide stability in Medicare physician payments moving forward -$67M in appropriations for HRSA Organ Transplant work in FY26 (funding to modernize the US transplant system and support living donors through reimbursement for living kidney donation-related costs) -$25M in appropriations for HHS in FY26 to support KidneyX (public-private partnership to catalyze innovation in kidney disease prevention, diagnosis, and treatment through a series of prize competitions) -Called for HRSA to focus on transparency for patients, improvements to data use and management, and attention to allocation out of sequence issues as it implements the 2023 Securing the US OPTN Act and FY25 appropriations -Called for the creation of an Officer of Kidney Health and Transplantation within the immediate office of the secretary of HHS (to coordinate kidney health care, research, and data-related efforts across the numerous HHS agencies with a role in kidney health) -Urged CMS to ensure kidney health data, particularly through the EQRS, remains readily available to the kidney research community as well as to the USRDS -Urged additional improvements to kidney care models at CMMI, particularly CKCC and IOTA
-$51.303B in appropriations for NIH in FY26 (to support investments in basic, clinical, translational, and other health-related research activities) -$25M in appropriations for HHS in FY26 to support KidneyX (public-private partnership to catalyze innovation in kidney disease prevention, diagnosis, and treatment through a series of prize competitions)