AMERICAN SOCIETY OF NEPHROLOGY

-Expanding Support for Living Donors Act (H.R. 7868) Legislation to expand how much living donors can be reimbursed and to increase the threshold for income-based qualification -Honor Our Living Donors Act (H.R. 628 / S. 957) Legislation to simplify the process of determining eligibility for reimbursement for living kidney donation-related costs -Living Donor Protection Act (H.R. 4583) and related FMLA bill (H.R. 4582 and S. 1552). Clarifies and strengthens protections for Americans who donate an organ. -$77M in appropriations for HRSA Organ Transplant work in FY27 (funding to modernize the US transplant system and support living donors through reimbursement for living kidney donation-related costs) -$25M in appropriations for HHS in FY27 to support KidneyX (public-private partnership to catalyze innovation in kidney disease prevention, diagnosis, and treatment through a series of prize competitions) -Called for continued focus on modernizing the U.S. transplant system, including implementing the 2023 Securing the U.S. OPTN Act -Called for the creation of an Officer of Kidney Health and Transplantation within the immediate office of the secretary of HHS (to coordinate kidney health care, research, and data-related efforts across the numerous HHS agencies with a role in kidney health) -Urged HHS to ensure kidney health data remains accessible and complete, including advancing data-sharing, data standards, and interoperability -Raised questions about access to and quality of care in Medicare Advantage plans for kidney patients

-$51.303B in appropriations for NIH in FY27 (to support investments in basic, clinical, translational, and other health-related research activities) -$1 billion in appropriations for kidney research at NIDDK within the overall NIDDK FY27 appropriation, implementing the recommendations of the Transforming Kidney Health Research report -$25M in appropriations for HHS in FY27 to support KidneyX (public-private partnership to catalyze innovation in kidney disease prevention, diagnosis, and treatment through a series of prize competitions)